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自闭症治疗网络:为所有自闭症儿童带来最佳实践。

The Autism Treatment Network: Bringing Best Practices to All Children With Autism.

机构信息

Department of Pediatrics, Nationwide Children's Hospital, Columbus, Ohio;

College of Medicine, Ohio State University, Columbus, Ohio.

出版信息

Pediatrics. 2020 Apr;145(Suppl 1):S13-S19. doi: 10.1542/2019-1895D.

DOI:10.1542/2019-1895D
PMID:32238527
Abstract

The Autism Treatment Network and Autism Intervention Research Network on Physical Health were established in 2008 with goals of improving understanding of the medical aspects of autism spectrum disorders. Over the past decade, the combined network has conducted >2 dozen clinical studies, established clinical pathways for best practice, developed tool kits for professionals and families to support better care, and disseminated these works through numerous presentations at scientific meetings and publications in medical journals. As the joint network enters its second decade continuing this work, it is undergoing a transformation to increase these activities and accelerate their incorporation into clinical care at the primary care and specialty care levels. In this article, we describe the past accomplishments and present activities. We also outline planned undertakings such as the establishment of the Autism Learning Health Network, the increasing role of family members as co-producers of the work of the network, the growth of clinical trials activities with funding from foundations and industry, and expansion of work with primary care practices and autism specialty centers. We also discuss the challenges of supporting network activities and potential solutions to sustain the network.

摘要

自闭症治疗网络和自闭症干预研究网络的身体健康成立于 2008 年,目标是提高对自闭症谱系障碍的医学方面的理解。在过去的十年中,联合网络已经进行了二十多项临床研究,为最佳实践建立了临床途径,为专业人员和家庭开发了工具包,以支持更好的护理,并通过在科学会议上的多次演讲和医学期刊上的出版物传播这些工作。随着联合网络进入第二个十年继续开展这项工作,它正在进行转型,以增加这些活动,并加速将其纳入初级保健和专业保健层面的临床护理。在本文中,我们描述了过去的成就和现在的活动。我们还概述了计划中的工作,例如建立自闭症学习健康网络,让家庭成员更多地参与网络工作的共同制作,增加来自基金会和行业的临床试验活动,以及扩大与初级保健实践和自闭症专业中心的合作。我们还讨论了支持网络活动的挑战和维持网络的潜在解决方案。

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J Autism Dev Disord. 2024 Oct 23. doi: 10.1007/s10803-024-06597-8.
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A Longitudinal Mixed-Methods Characterization of Family Support from Adolescence to Young Adulthood in Autism and Other Developmental Disabilities.青少年至成年期自闭症和其他发育障碍患者家庭支持的纵向混合方法特征描述。
J Autism Dev Disord. 2024 Sep;54(9):3225-3241. doi: 10.1007/s10803-023-06070-y. Epub 2023 Sep 5.
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J Autism Dev Disord. 2024 Apr;54(4):1507-1516. doi: 10.1007/s10803-022-05885-5. Epub 2023 Jan 13.
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