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自闭症症状领域与照顾者压力各方面之间的关联。

Associations Among Autism Symptom Domains and Facets of Caregiver Strain.

机构信息

University of Virginia, 417 Emmet St. South, 22903, Charlottesville, VA, USA.

出版信息

J Autism Dev Disord. 2024 Apr;54(4):1507-1516. doi: 10.1007/s10803-022-05885-5. Epub 2023 Jan 13.

DOI:10.1007/s10803-022-05885-5
PMID:36637596
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10931534/
Abstract

Parents of children with autism spectrum disorder (ASD) often experience elevated levels of caregiver strain (CGS). Few studies have examined the relationship between core ASD symptoms and each facet of CGS: objective, subjective internalized, and subjective externalized strain. The predictive effect of core and associated features of ASD on CGS facets were investigated, while also exploring the moderating effect of age. Atypical behaviors and behavior problems were the strongest predictors of all types of caregiver strain. For younger children, more repetitive behaviors predicted higher externalized strain, yet the opposite was true for parents of adolescents. Given that caregiver strain impacts parents' service utilization patterns, future research should focus on strategies to support parents in reducing caregiver strain.

摘要

自闭症谱系障碍(ASD)儿童的父母通常会经历更高水平的照顾者压力(CGS)。很少有研究探讨核心 ASD 症状与 CGS 各个方面之间的关系:客观、主观内化和主观外化的压力。研究了 ASD 的核心和相关特征对 CGS 方面的预测作用,同时还探讨了年龄的调节作用。异常行为和行为问题是所有类型照顾者压力的最强预测因素。对于年龄较小的儿童,更多的重复行为预示着更高的外化压力,但对于青少年的父母则恰恰相反。鉴于照顾者压力会影响父母的服务利用模式,未来的研究应侧重于支持父母减轻照顾者压力的策略。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/74f8/10931534/6adc31fee780/nihms-1880300-f0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/74f8/10931534/6adc31fee780/nihms-1880300-f0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/74f8/10931534/6adc31fee780/nihms-1880300-f0001.jpg

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本文引用的文献

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J Autism Dev Disord. 2024 May 14. doi: 10.1007/s10803-024-06307-4.
2
Caregiver strain among North American parents of children from the Autism Treatment Network Registry Call-Back Study.北美自闭症治疗网络注册回拨研究患儿父母的看护压力。
Autism. 2022 Aug;26(6):1460-1476. doi: 10.1177/13623613211052108. Epub 2021 Oct 16.
3
Brief Report: Replication of the Five-Factor Structure of the Autism Impact Measure (AIM) in an Independent Sample.
简要报告:在独立样本中复制自闭症影响量表(AIM)的五因素结构。
J Autism Dev Disord. 2023 May;53(5):2161-2165. doi: 10.1007/s10803-021-05303-2. Epub 2021 Oct 9.
4
Predictors of Caregiver Strain for Parents of Children with Autism Spectrum Disorder.自闭症谱系障碍儿童父母的照护者压力预测因素。
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5
The Autism Treatment Network: Bringing Best Practices to All Children With Autism.自闭症治疗网络:为所有自闭症儿童带来最佳实践。
Pediatrics. 2020 Apr;145(Suppl 1):S13-S19. doi: 10.1542/2019-1895D.
6
Psychometric Validation of the Autism Impact Measure (AIM).自闭症影响量表(AIM)的心理计量验证。
J Autism Dev Disord. 2019 Jun;49(6):2559-2570. doi: 10.1007/s10803-019-04011-2.
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Construct Validity of the Autism Impact Measure (AIM).自闭症影响量表(AIM)的建构效度。
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Teaching Parents Behavioral Strategies for Autism Spectrum Disorder (ASD): Effects on Stress, Strain, and Competence.教授自闭症谱系障碍(ASD)儿童家长行为策略:对压力、紧张和能力的影响。
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