Lovejoy N C, Moran T A
Department of Physiological Nursing, University of California, San Francisco.
Int J Nurs Stud. 1988;25(3):207-16. doi: 10.1016/0020-7489(88)90047-8.
Due to the current absence of curative therapies, patients with AIDS or ARC (AIDS-Related Complex) rely on information to provide them with a sense of control over their lives [Institute of Medicine, National Academy of Sciences, Confronting AIDS: Directions for Public Health, Health Care and Research (1986)]. The purpose of this study was to describe AIDS beliefs, behaviors and informational needs of patients with AIDS or AIDS-related complex 7 years into the epidemic. Data were collected once using a modified version of the AIDS Beliefs and Behaviors Questionnaire (ABBQ) developed by McKusick et al. [Am. J. Public Hlth. 75, 493-496 (1985)] and Moran et al. [Oncol. Nurs. Forum (1988)]. Study results showed that 90% of outpatients (N = 30) at an internationally recognized AIDS medical center wanted more information about building their immune systems. Surprisingly few patients (10%) wanted explicit information about safe sexual behaviors, although 4 years into the epidemic, this information was a central concern [Moran, Unpublished Masters thesis (1986)]. Results suggests that nurses need to take a more active role in monitoring and addressing patients' changing informational needs.
由于目前缺乏治愈性疗法，艾滋病患者或艾滋病相关综合征（ARC）患者依赖信息来获得对自己生活的掌控感[医学研究所，美国国家科学院，《直面艾滋病：公共卫生、医疗保健及研究方向》（1986年）]。本研究的目的是描述在艾滋病流行7年后，艾滋病患者或艾滋病相关综合征患者的艾滋病认知、行为及信息需求。使用由麦库西克等人[《美国公共卫生杂志》75，493 - 496（1985年）]以及莫兰等人[《肿瘤护理论坛》（1988年）]开发的艾滋病认知与行为问卷（ABBQ）的修改版一次性收集数据。研究结果显示，在一家国际知名的艾滋病医疗中心，90%的门诊患者（N = 30）希望获得更多关于增强自身免疫系统的信息。令人惊讶的是，尽管在艾滋病流行4年后，安全性行为信息曾是核心关注点[莫兰，未发表的硕士论文（1986年）]，但想要获取明确安全性行为信息的患者却少之又少（10%）。结果表明，护士需要在监测和满足患者不断变化的信息需求方面发挥更积极的作用。
