School of Nursing, College of Health and Medicine, University of Tasmania, Sydney, Australia.
Discipline of Psychiatry, Sydney Medical School, the University of Sydney, Sydney, Australia.
Issues Ment Health Nurs. 2020 Aug;41(8):667-683. doi: 10.1080/01612840.2019.1710012. Epub 2020 Apr 7.
To synthesise qualitative research that explored caregivers' experiences of caring for family diagnosed with schizophrenia. Electronic databases including PsycINFO, PubMed, CINAHL and Scopus were searched to identify relevant journal articles published from 2000 to March 2019. Quality was assessed and thematic synthesis of the qualitative research evidence undertaken. Papers were screened and independently appraised by two reviewers using The Critical Appraisal Skills Programme (CASP) for Qualitative Studies Checklist. The review was guided by Thomas and Harden's framework for thematic synthesis of qualitative research evidence. The breadth of information across the 43 papers was noteworthy. Review of the findings noted that almost all of what was discussed fell into three broad themes: the 'feelings' of the caregiver towards their role, the patient and others, including the health system; the 'impacts' of the diagnosis and their caregiving role on the caregiver; and the 'needs' of the caregiver to improve the patient's quality of life and thereby the caregiver's quality of life. Within needs also came recommendations for future changes. Studies have shown that the caregiving process is a complex one, with both negative and positive emotional reactions, societal barriers, such as stigma and isolation, and unmet needs, such as timely, relevant and helpful information. Meeting the needs identified by caregivers has the capacity to address the impacts of the illness and caregiving and thereby reduce the negative feelings associated with the caregiver role.
对探索照顾者照顾被诊断患有精神分裂症的家庭的经历的定性研究进行综合。电子数据库包括 PsycINFO、PubMed、CINAHL 和 Scopus，以确定从 2000 年到 2019 年 3 月发表的相关期刊文章。对质量进行了评估，并对定性研究证据进行了主题综合。使用定性研究的批判性评估技能计划 (CASP) 检查表对论文进行筛选和由两名评审员进行独立评估。审查由托马斯和哈顿的定性研究证据主题综合框架指导。43 篇论文所涵盖的信息范围广泛。审查结果表明，几乎所有讨论的内容都归入三个广泛的主题：照顾者对其角色、患者和他人（包括卫生系统）的“感受”；诊断及其照顾角色对照顾者的“影响”；以及照顾者改善患者生活质量的“需求”，从而提高照顾者的生活质量。在需求中还提出了对未来变革的建议。研究表明，照顾过程是一个复杂的过程，既有负面的也有正面的情绪反应，有社会障碍，如耻辱和孤立，以及未满足的需求，如及时、相关和有帮助的信息。满足照顾者确定的需求有能力解决疾病和照顾的影响，从而减轻与照顾者角色相关的负面感受。
