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通过社交媒体接触青少年和青年癌症患者:有意义照片计划的影响。

Reaching Adolescent and Young Adult Cancer Patients Through Social Media: Impact of the Photographs of Meaning Program.

机构信息

Department of Psychology, Roswell Park Comprehensive Cancer Center, Buffalo, New York, USA.

Pediatrics, Johns Hopkins All Children's Hospital, Saint Petersburg, Florida, USA.

出版信息

J Adolesc Young Adult Oncol. 2020 Aug;9(4):508-513. doi: 10.1089/jayao.2019.0140. Epub 2020 Apr 7.

DOI:10.1089/jayao.2019.0140
PMID:32255697
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7640743/
Abstract

This study assessed the feasibility and preliminary efficacy of the Photographs of Meaning Program for Adolescent and Young Adult cancer patients and survivors (POM-AYA). POM-AYA is a structured 10-week meaning-based intervention in which participants post photographs and accompanying narratives through a social media platform. Measures of depression, overall quality of life (QoL), and spiritual well-being were assessed on consent (T1), after completing the 10-week intervention (T2) and 2 months' postintervention (T3). Participants also completed a satisfaction questionnaire and follow-up semi-structured interviews. Thirty AYA cancer patients and survivors (ages 17-36) were enrolled in the study. At T2, depressive symptoms were significantly lower and QoL was significantly higher compared with T1. These gains were maintained at T3. There were no significant differences in reported spiritual well-being across the study period. Overall, participants reported high rates of study satisfaction in both the survey and qualitative feedback. POM-AYA appears to be a potentially beneficial, widely accessible intervention in reducing depressive symptoms and increasing QoL in AYA cancer patients and survivors.

摘要

本研究评估了《青少年和年轻成人癌症患者和幸存者的意义照片计划》(POM-AYA)的可行性和初步疗效。POM-AYA 是一个为期 10 周的基于意义的结构化干预措施,参与者通过社交媒体平台发布照片和相关叙述。在同意(T1)时、完成 10 周干预(T2)后和干预后 2 个月(T3)时评估抑郁、整体生活质量(QoL)和精神幸福感。参与者还完成了满意度问卷和后续半结构化访谈。 本研究纳入了 30 名青少年和年轻成人癌症患者和幸存者(年龄 17-36 岁)。与 T1 相比,T2 时的抑郁症状明显降低,QoL 明显升高。这些收益在 T3 时得以维持。在整个研究期间,报告的精神幸福感没有显著差异。总的来说,参与者在调查和定性反馈中都报告了很高的研究满意度。 POM-AYA 似乎是一种潜在有益的、广泛可及的干预措施,可降低青少年和年轻成人癌症患者和幸存者的抑郁症状并提高 QoL。

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本文引用的文献

1
The Photographs of Meaning Program for Pediatric Palliative Caregivers: Feasibility of a Novel Meaning-Making Intervention.针对儿科姑息治疗护理人员的意义照片项目:一种新型意义构建干预措施的可行性
Am J Hosp Palliat Care. 2019 Jul;36(7):557-563. doi: 10.1177/1049909118824560. Epub 2019 Jan 21.
2
Digital Health Interventions for Adolescent and Young Adult Cancer Survivors.针对青少年和青年癌症幸存者的数字健康干预措施。
JCO Clin Cancer Inform. 2018 Dec;2:1-15. doi: 10.1200/CCI.17.00138.
3
Photographs of meaning: A novel social media intervention for adolescent and young adult cancer patients.意义照片:一种针对青少年和青年癌症患者的新型社交媒体干预措施。
Psychooncology. 2019 Jan;28(1):198-200. doi: 10.1002/pon.4896. Epub 2018 Oct 12.
4
Exploring Adolescents' Cancer Journey Through Photovoice: A Narrative Synthesis.通过照片发声法探索青少年的癌症历程:一项叙事性综述
J Adolesc Young Adult Oncol. 2018 Feb;7(1):15-21. doi: 10.1089/jayao.2017.0073. Epub 2017 Oct 12.
5
Health promotion and psychological interventions for adolescent and young adult cancer survivors: A systematic literature review.促进青少年和青年癌症幸存者的健康和心理干预:系统文献综述。
Cancer Treat Rev. 2017 Apr;55:57-70. doi: 10.1016/j.ctrv.2017.02.011. Epub 2017 Mar 6.
6
Psychosocial outcomes and interventions among cancer survivors diagnosed during adolescence and young adulthood (AYA): a systematic review.青少年和青年期(AYA)确诊的癌症幸存者的心理社会结局与干预措施:一项系统综述
J Cancer Surviv. 2016 Oct;10(5):814-31. doi: 10.1007/s11764-016-0527-6. Epub 2016 Feb 26.
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