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通过社交媒体接触青少年和青年癌症患者:有意义照片计划的影响。

Reaching Adolescent and Young Adult Cancer Patients Through Social Media: Impact of the Photographs of Meaning Program.

机构信息

Department of Psychology, Roswell Park Comprehensive Cancer Center, Buffalo, New York, USA.

Pediatrics, Johns Hopkins All Children's Hospital, Saint Petersburg, Florida, USA.

出版信息

J Adolesc Young Adult Oncol. 2020 Aug;9(4):508-513. doi: 10.1089/jayao.2019.0140. Epub 2020 Apr 7.

Abstract

This study assessed the feasibility and preliminary efficacy of the Photographs of Meaning Program for Adolescent and Young Adult cancer patients and survivors (POM-AYA). POM-AYA is a structured 10-week meaning-based intervention in which participants post photographs and accompanying narratives through a social media platform. Measures of depression, overall quality of life (QoL), and spiritual well-being were assessed on consent (T1), after completing the 10-week intervention (T2) and 2 months' postintervention (T3). Participants also completed a satisfaction questionnaire and follow-up semi-structured interviews. Thirty AYA cancer patients and survivors (ages 17-36) were enrolled in the study. At T2, depressive symptoms were significantly lower and QoL was significantly higher compared with T1. These gains were maintained at T3. There were no significant differences in reported spiritual well-being across the study period. Overall, participants reported high rates of study satisfaction in both the survey and qualitative feedback. POM-AYA appears to be a potentially beneficial, widely accessible intervention in reducing depressive symptoms and increasing QoL in AYA cancer patients and survivors.

摘要

本研究评估了《青少年和年轻成人癌症患者和幸存者的意义照片计划》(POM-AYA)的可行性和初步疗效。POM-AYA 是一个为期 10 周的基于意义的结构化干预措施,参与者通过社交媒体平台发布照片和相关叙述。在同意(T1)时、完成 10 周干预(T2)后和干预后 2 个月(T3)时评估抑郁、整体生活质量(QoL)和精神幸福感。参与者还完成了满意度问卷和后续半结构化访谈。 本研究纳入了 30 名青少年和年轻成人癌症患者和幸存者(年龄 17-36 岁)。与 T1 相比,T2 时的抑郁症状明显降低,QoL 明显升高。这些收益在 T3 时得以维持。在整个研究期间,报告的精神幸福感没有显著差异。总的来说,参与者在调查和定性反馈中都报告了很高的研究满意度。 POM-AYA 似乎是一种潜在有益的、广泛可及的干预措施,可降低青少年和年轻成人癌症患者和幸存者的抑郁症状并提高 QoL。

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