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已解决和未解决的生物伦理真实性问题。

Resolved and unresolved bioethical authenticity problems.

作者信息

Ahlin Marceta Jesper

机构信息

Division of Philosophy, KTH Royal Institute of Technology, Stockholm, Sweden.

出版信息

Monash Bioeth Rev. 2020 May;38(1):1-14. doi: 10.1007/s40592-020-00108-y.

DOI:10.1007/s40592-020-00108-y
PMID:32266592
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7205777/
Abstract

Respect for autonomy is a central moral principle in bioethics. It is sometimes argued that authenticity, i.e., being "real," "genuine," "true to oneself," or similar, is crucial to a person's autonomy. Patients sometimes make what appears to be inauthentic decisions, such as when (decision-competent) anorexia nervosa patients refuse treatment to avoid gaining weight, despite that the risk of harm is very high. If such decisions are inauthentic, and therefore non-autonomous, it may be the case they should be overridden for paternalist reasons. However, it is not clear what justifies the judgment that someone or something is inauthentic. This article discusses one recent theory of what justifies judgments of inauthenticity. It is argued that the theory is seriously limited, as it only provides guidance in three out of nine identified cases. There are at least six authenticity-related problems to be solved, and autonomy theorists thus have reason to engage with the topic of authenticity in practical biomedicine.

摘要

尊重自主性是生物伦理学中的一项核心道德原则。有时有人认为,本真,即“真实”“真诚”“忠于自己”或类似的特质,对一个人的自主性至关重要。患者有时会做出看似不真实的决定,比如(有决策能力的)神经性厌食症患者拒绝治疗以避免体重增加,尽管这样做的伤害风险非常高。如果这样的决定是不真实的,因此是非自主性的,那么出于家长主义的原因,这些决定可能应该被推翻。然而,尚不清楚是什么证明了某人或某事是不真实的这一判断的合理性。本文讨论了一种最近关于证明不真实性判断合理性的理论。有人认为,该理论存在严重局限性,因为它仅在九个已确定的案例中的三个案例中提供了指导。至少有六个与本真相关的问题有待解决,因此自主性理论学家有理由在实际的生物医学中探讨本真这一话题。

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1
Resolved and unresolved bioethical authenticity problems.已解决和未解决的生物伦理真实性问题。
Monash Bioeth Rev. 2020 May;38(1):1-14. doi: 10.1007/s40592-020-00108-y.
2
What Justifies Judgments of Inauthenticity?对不真实的判断依据是什么?
HEC Forum. 2018 Dec;30(4):361-377. doi: 10.1007/s10730-018-9356-5.
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A non-ideal authenticity-based conceptualization of personal autonomy.一种基于非理想本真性的个人自主性概念化。
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Paternalism in the name of autonomy.以自主之名的家长式作风。
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Respect for autonomy: deciding what is good for oneself.尊重自主性:决定对自己有益的事情。
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The place of autonomy in bioethics.自主权在生物伦理学中的地位。
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[Ethics in anorexia nervosa: autonomy, beneficence or responsibility?].[神经性厌食症中的伦理:自主性、善行还是责任?]
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Protecting autonomy as authenticity using Ulysses contracts.利用尤利西斯契约将自主性保护为真实性。
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A critique of the principle of 'respect for autonomy', grounded in African thought.基于非洲思想对“尊重自主性”原则的批判。
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Should Assessments of Decision-Making Capacity Be Risk-Sensitive? A Systematic Review.对决策能力的评估应该对风险敏感吗?一项系统综述。
Front Psychol. 2022 Jun 29;13:897144. doi: 10.3389/fpsyg.2022.897144. eCollection 2022.

本文引用的文献

1
The notion of free will and its ethical relevance for decision-making capacity.自由意志的概念及其对决策能力的伦理相关性。
BMC Med Ethics. 2019 May 8;20(1):31. doi: 10.1186/s12910-019-0371-0.
2
A non-ideal authenticity-based conceptualization of personal autonomy.一种基于非理想本真性的个人自主性概念化。
Med Health Care Philos. 2019 Sep;22(3):387-395. doi: 10.1007/s11019-018-9879-1.
3
What Justifies Judgments of Inauthenticity?对不真实的判断依据是什么?
HEC Forum. 2018 Dec;30(4):361-377. doi: 10.1007/s10730-018-9356-5.
4
The Need for Authenticity-Based Autonomy in Medical Ethics.医学伦理学中基于真实性的自主性的必要性。
HEC Forum. 2018 Sep;30(3):191-209. doi: 10.1007/s10730-017-9335-2.
5
The impossibility of reliably determining the authenticity of desires: implications for informed consent.可靠确定欲望真实性的不可能性:对知情同意的影响
Med Health Care Philos. 2018 Mar;21(1):43-50. doi: 10.1007/s11019-017-9783-0.
6
Authenticity and psychiatric disorder: does autonomy of personal preferences matter?真实性与精神障碍:个人偏好的自主性重要吗?
Med Health Care Philos. 2014 Feb;17(1):115-22. doi: 10.1007/s11019-013-9509-x.
7
Anorexia nervosa and the language of authenticity.神经性厌食症与真实性的语言。
Hastings Cent Rep. 2011 Nov-Dec;41(6):19-29. doi: 10.1002/j.1552-146x.2011.tb00153.x.
8
The concept of voluntary consent.自愿同意的概念。
Am J Bioeth. 2011 Aug;11(8):6-16. doi: 10.1080/15265161.2011.583318.
9
Brokering authenticity: Borderline personality disorder and the ethics of care in an American eating disorder clinic.促成真实性:美国一家饮食失调诊所中的边缘型人格障碍与关怀伦理
Curr Anthropol. 2009 Jun;50(3):281-302. doi: 10.1086/598782.
10
The ethics of self-change: becoming oneself by way of antidepressants or psychotherapy?自我改变的伦理:通过抗抑郁药或心理治疗成为自己?
Med Health Care Philos. 2009 Jun;12(2):169-78. doi: 10.1007/s11019-009-9190-2. Epub 2009 Feb 25.