Haahr Anita, Norlyk Annelise, Hall Elisabeth O C, Hansen Kirsten Elisabeth, Østergaard Karen, Kirkevold Marit
Research Centre for Health and Welfare Technology, Programme for Rehabilitation, VIA University College, Aarhus, Denmark.
Public Health, Nursing, Aarhus University, Aarhus, Denmark.
Int J Qual Stud Health Well-being. 2020 Dec;15(1):1748361. doi: 10.1080/17482631.2020.1748361.
Treatment with deep brain stimulation for Parkinson's disease, leads to a rapid improvement in mobility, which may challenge patients and spouses when adjusting to everyday life. An intervention, developed to support the adjustment to everyday life with DBS, demonstrated that individualized meetings with a specialized nurse was experienced as important and fruitful by both patient and spouses. The aim was to gain a deeper understanding of how the meetings contributed to the adjustment process. 38 audio-recorded meetings and six written summaries from eight couples participating in the intervention, were analyzed in a hermeneutic process. The analysis revealed four themes: A relational triad of co-creating personal knowing. Sharing and listening in an atmosphere of trust and openness. Unveiling the couple's everyday life, coping strategies and expectations. Supporting adjustment through knowing their personal story. The triadic dynamics in the meetings were quite particular. The main focus was the patients' and spouses' stories, individually and as a couple. The DBS nurse pursues solutions based on professional and specialized knowledge of Parkinson's disease and the couple's everyday life. Thus, the intervention meetings offered tailored, individualized and specialized care in supporting adjustment to DBS for PD both individually and as couples.
帕金森病的深部脑刺激治疗可使患者的运动能力迅速改善,这在患者及其配偶适应日常生活时可能会带来挑战。一项旨在支持通过深部脑刺激适应日常生活的干预措施表明,患者及其配偶都认为与专科护士进行个性化会面非常重要且富有成效。目的是更深入地了解这些会面如何促进适应过程。在一个诠释学过程中,对参与该干预措施的八对夫妇的38次录音会面和六份书面总结进行了分析。分析揭示了四个主题:共同创造个人认知的关系三元组。在信任和开放的氛围中分享与倾听。揭示夫妻的日常生活、应对策略和期望。通过了解他们的个人故事来支持适应。会面中的三元动态非常独特。主要焦点是患者及其配偶各自以及作为夫妻的故事。深部脑刺激护士根据帕金森病的专业知识和夫妻的日常生活寻求解决方案。因此,干预会面提供了量身定制、个性化和专业化的护理,以支持帕金森病患者个体及其夫妻双方适应深部脑刺激治疗。