Knoop Colleen D, Kadish Robert, Hager Kathy, Park Michael C, Loprinzi Paul D, LaFaver Kathrin
Ochsner Health System, Division of Movement Disorders, 1514 Jefferson Highway, New Orleans, LA 70121, USA.
Department of Neurology, University of Louisville, 220 Abraham Flexner Way, Suite 606, Louisville, KY 40202, USA.
Parkinsons Dis. 2017;2017:9360354. doi: 10.1155/2017/9360354. Epub 2017 Aug 7.
Improvements in quality of life, tremor, and other motor features have been recognized as superior in patients with advanced Parkinson's disease (PD) treated with deep brain stimulation (DBS) surgery versus best medical therapy. We studied a group of patients with PD after undergoing DBS surgery in regard to expectations and satisfaction with DBS outcomes to determine gaps in patient education.
This study was a retrospective, single academic center chart review and outcome questionnaire sent to patients with PD who had undergone DBS surgery between 2007 and 2014.
All patients surveyed indicated that benefit from DBS surgery met their overall expectations at least partially, but only 46.4% () were in complete agreement. 3.6% () of participants strongly disagreed that preoperative education prepared them adequately for the procedure and 17.9% () only somewhat agreed.
Our findings demonstrate that patients' expectations of DBS surgery in PD were at least partially met. However, there was a considerable percentage of patients who did not feel adequately prepared for the procedure. A structured, multidisciplinary team approach in educating PD patients throughout the different stages of DBS surgery may be helpful in optimizing patients' experience and satisfaction with surgery outcomes.
对于接受脑深部电刺激（DBS）手术治疗的晚期帕金森病（PD）患者，其生活质量、震颤及其他运动特征的改善被认为优于最佳药物治疗。我们研究了一组接受DBS手术的PD患者对DBS手术效果的期望和满意度，以确定患者教育方面的差距。
本研究是一项回顾性研究，对2007年至2014年间在单一学术中心接受DBS手术的PD患者进行病历审查并向其发送结果调查问卷。
所有接受调查的患者均表示，DBS手术带来的益处至少部分满足了他们的总体期望，但只有46.4%（）的患者完全认同。3.6%（）的参与者强烈不同意术前教育使他们为手术做好了充分准备，17.9%（）的参与者只是有些认同。
我们的研究结果表明，PD患者对DBS手术所抱的期望至少部分得到了满足。然而，有相当比例的患者觉得自己对手术没有做好充分准备。在DBS手术的不同阶段采用结构化的多学科团队方法对PD患者进行教育，可能有助于优化患者的手术体验和对手术效果的满意度。
