Martin Summer C
California State University, Fullerton, USA
J Fam Nurs. 2016 May;22(2):224-51. doi: 10.1177/1074840716640605. Epub 2016 Apr 4.
The ways in which Parkinson's disease (PD) impacts, and is experienced by, the couple (i.e., the individual with PD and his or her spouse or other romantic partner) have not been fully elucidated. Such research is strongly warranted because when one member of a couple is chronically ill, it can cause major distress for not only the patient but also for his or her partner and their relationship. Therefore, the goal of this study was to examine how PD affects a couple's relationship. Data from 44 individual, in-depth interviews (with 21 persons with PD and 23 partners) revealed several challenges that PD commonly invokes in the patient-partner relationship, though most participants reported that PD had not decreased their overall relational closeness. The findings have significant practical implications for family-focused care.
帕金森病（PD）对夫妻（即患有帕金森病的个体及其配偶或其他浪漫伴侣）的影响以及夫妻双方的体验尚未得到充分阐明。此类研究非常有必要，因为当夫妻中的一方患有慢性病时，不仅会给患者本人带来巨大痛苦，也会给其伴侣及其关系带来困扰。因此，本研究的目的是探讨帕金森病如何影响夫妻关系。对44人进行的个人深度访谈（其中21人为帕金森病患者，23人为患者伴侣）的数据显示，帕金森病在患者与伴侣的关系中通常会引发一些挑战，不过大多数参与者表示帕金森病并未降低他们整体的关系亲密度。这些研究结果对以家庭为中心的护理具有重要的实际意义。
