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阿尔茨海默病患者家属的孤独感和负担感知。

Loneliness and Burden Perceived by Family Caregivers of Patients With Alzheimer Disease.

机构信息

Department of Psychiatry and Psychotherapy A, General Hospital Hall, Hall in Tirol, Austria.

Leibniz-Institut für Wissensmedien, University of Tuebingen, Germany.

出版信息

Am J Alzheimers Dis Other Demen. 2020 Jan-Dec;35:1533317520917788. doi: 10.1177/1533317520917788.

Abstract

BACKGROUND

The present study aimed at investigating loneliness and burden experienced by family members caring for relatives diagnosed with Alzheimer disease.

METHODS

Participants were 40 caregivers of inpatients with Alzheimer disease. Correlation and multiple regression analyses were conducted to investigate whether caregivers' loneliness (uni- and multidimensional) and burden are associated with and predicted by (1) specific caregiver characteristics and/or (2) patients' dementia severity and neuropsychiatric symptoms.

RESULTS

Loneliness was significantly correlated with caregivers' sex, age, and living circumstances, while burden was significantly correlated with caregivers' education solely. Regression analyses revealed that caregivers' sex and living circumstances contributed significantly to variance explanation of loneliness (but not burden), while the additional consideration of patient variables did not improve model fit.

CONCLUSIONS

Loneliness reported by caregivers of relatives diagnosed with dementia is significantly modulated by caregiver (but not patient) characteristics. Notably, both uni- and multidimensional loneliness scales seem to be sensitive diagnostic tools.

摘要

背景

本研究旨在调查照顾被诊断为阿尔茨海默病的亲属的家庭成员所经历的孤独感和负担。

方法

参与者为 40 名阿尔茨海默病住院患者的照顾者。采用相关分析和多元回归分析,探讨照顾者的孤独感(单一维度和多维维度)和负担是否与(1)特定照顾者特征和/或(2)患者的痴呆严重程度和神经精神症状相关,并预测这些特征和症状。

结果

孤独感与照顾者的性别、年龄和生活环境显著相关,而负担仅与照顾者的教育程度显著相关。回归分析表明,照顾者的性别和生活环境对孤独感的变异解释有显著贡献(但对负担没有贡献),而考虑患者变量并不能提高模型拟合度。

结论

被诊断为痴呆的亲属的照顾者所报告的孤独感受到照顾者(而非患者)特征的显著调节。值得注意的是,单一维度和多维孤独感量表似乎都是敏感的诊断工具。

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