Rodrigues Margarida, Rodrigues Joana, Afonso Carmo, Santos-Faria Daniela, Peixoto Daniela, Teixeira Filipa, Neves Joana, Silva Joana, Tavares-Costa José, Alcino Sérgio, Azevedo Soraia, Gandarez Fátima
Centro de Reabilitação do Norte.
Unidade Local de Saúde do Alto Minho.
Acta Reumatol Port. 2019 Oct-Dec;44(4):273-280.
Evaluation and characterization of hand function in patients with rheumatoid (RA) arthritis and, secondarily, identification of the use of adaptive equipments.
Firstly, a written informed consent was obtained and then an anonymous questionnaire was filled by RA outpatients after observation at the rheumatology consultation with no other musculoskeletal or neuromuscular disorders that would determine major functional impairment of hand function. Sociodemographic and clinical variables were collected and the Cochin Hand Functional Scale (CHFS) was applied. Classical deformities of hand and/or wrist were observed and recorded by the attending physician.
A total of 79 patients were enrolled. In the overall sample, most patients were female A sample of 79 patients, mostly female (69.60%), with a mean age of 59.72 ± 11.77 years and with a mean diagnosis duration of 11.72 ± 8.29 years. The majority (73.40%) had at least one hand or wrist deformity, the most frequent being atrophy of the interosseous muscles followed by ulnar deviation of the metacarpophalangeal joints and piano key deformity of the wrist. The mean CHFS score was 17.94 ± 18.26 points with a minimum and maximum value recorded of 0 and 80 points, respectively. The presence of hand deformities, Health Assessment Questionnaire score (HAQ), hand pain and diagnosis duration were correlated with the CHFS score. Six patients had assistive devices and only in one case it was used to overcome hand's functional impairment.
Most patients presented at least one classic RA deformity after a mean diagnosis duration of approximately 12 years and under pharmacological treatment. Despite this, most patients scored significantly below CHFS maximum score, but only 18 reported no difficulty in any of the tasks mentioned in the scale. The fact that only a minority of these patients had assistive devices should alerts us to the need for a more thorough functional assessment and identification of needs among RA patients.
评估和描述类风湿性关节炎(RA)患者的手部功能,并其次确定适应性设备的使用情况。
首先,获得书面知情同意书,然后由类风湿性关节炎门诊患者在风湿病咨询门诊观察后填写一份匿名问卷,这些患者无其他会导致手部功能严重受损的肌肉骨骼或神经肌肉疾病。收集社会人口统计学和临床变量,并应用科钦手部功能量表(CHFS)。主治医生对手部和/或腕部的典型畸形进行观察和记录。
共纳入79例患者。在总体样本中,大多数患者为女性。79例患者的样本中,大多数为女性(69.60%),平均年龄为59.72±11.77岁,平均诊断时长为11.72±8.29年。大多数(73.40%)患者至少有一处手部或腕部畸形,最常见的是骨间肌萎缩,其次是掌指关节尺偏和腕部钢琴键畸形。CHFS平均得分为17.94±18.26分,记录的最小值和最大值分别为0分和80分。手部畸形的存在、健康评估问卷得分(HAQ)、手部疼痛和诊断时长与CHFS得分相关。6例患者有辅助设备,仅1例用于克服手部功能障碍。
大多数患者在平均诊断约12年后且接受药物治疗的情况下出现至少一种典型的类风湿性关节炎畸形。尽管如此,大多数患者的得分显著低于CHFS最高分,但只有18例报告在量表中提及的任何任务中均无困难。这些患者中只有少数拥有辅助设备这一事实应提醒我们,需要对类风湿性关节炎患者进行更全面的功能评估并确定其需求。