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“我不得不告诉我家的全科医生我患有肺癌”:肺癌患者对基于医院和社区的肺癌护理的看法。

'I had to tell my GP I had lung cancer': patient perspectives of hospital- and community-based lung cancer care.

机构信息

Cancer and Palliative Care Research and Evaluation Unit, Medical School, University of Western Australia, Nedlands, WA 6009, Australia; and Corresponding author. Email:

Cancer and Palliative Care Research and Evaluation Unit, Medical School, University of Western Australia, Nedlands, WA 6009, Australia.

出版信息

Aust J Prim Health. 2020 Apr;26(2):147-152. doi: 10.1071/PY19191.

Abstract

Lung cancer care spans both hospital- and community-based healthcare settings, and suboptimal communication between healthcare providers impacts on continuity and quality of care. Patients' experiences regarding: (1) communication between healthcare providers; and (2) the role of their GP during cancer treatment was explored in interviews with 47 Western Australian lung cancer patients. Thematic analysis using a phenomenological approach was undertaken to derive key themes regarding participant experiences. Poor communication between hospital cancer specialists (HCSs) influenced participants' treatment choices and perceptions of the quality of their care. Information provided by HCSs to GPs was often delayed or incomplete, and many participants perceived themselves as a messenger between healthcare settings. Participants' opinions about the GP role during cancer treatment ranged from 'no role' to an 'active member of the treating team'. A new model of cancer care is needed where the GP is considered part of the treating team. Early involvement of GPs and two-way communication between hospital and primary care during the disease continuum is required for this to occur.

摘要

肺癌的治疗既包括医院内的医疗护理,也包括社区内的医疗护理,医疗服务提供者之间沟通不畅会影响护理的连续性和质量。本研究通过对 47 名西澳大利亚州肺癌患者的访谈,探讨了患者在以下方面的体验:(1)医疗服务提供者之间的沟通;(2)在癌症治疗期间全科医生的作用。采用现象学方法的主题分析得出了关于参与者体验的关键主题。医院癌症专家(HCSs)之间沟通不畅,影响了患者的治疗选择和对护理质量的看法。HCSs 提供给全科医生的信息往往延迟或不完整,许多参与者认为自己是医疗场所之间的信息传递者。参与者对全科医生在癌症治疗期间作用的看法从“无作用”到“治疗团队的积极成员”不等。需要建立一种新的癌症治疗模式,将全科医生视为治疗团队的一部分。要实现这一点,需要在疾病连续体期间让全科医生尽早参与,并在医院和初级保健之间进行双向沟通。

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