Marsh Kathy K, Bush Ruth A, Connelly Cynthia D
University of San Diego, USA.
University of San Diego, USA; Rady Children's Hospital-San Diego, USA.
Health Informatics J. 2020 Dec;26(4):2586-2596. doi: 10.1177/1460458220911780. Epub 2020 Apr 17.
Emerging adults have been raised in the digital age and are therefore prime candidates for using a patient portal to manage chronic conditions. The limited body of research both identifies the underutilization of the patient portal and suggests increased use of the portal for the chronically ill as a tool to alleviate caregiver stress, as well as a potential modality to assist emerging adults to manage their chronic illnesses. This qualitative study was completed to obtain an understanding of emerging adults familiarity with the electronic patient portal and to elicit the perception of the usefulness of the portal to support self-management of type I diabetes. Findings provide a preliminary understanding of how a sampling of emerging adults with type I diabetes uses, perceives the benefits of, and wants to improve technology for diabetes self-management.
新兴成年人成长于数字时代，因此是使用患者门户网站来管理慢性病的主要人选。有限的研究既指出了患者门户网站利用不足的问题，也建议慢性病患者更多地使用该门户网站，作为减轻护理人员压力的工具，以及协助新兴成年人管理慢性病的一种潜在方式。本定性研究旨在了解新兴成年人对电子患者门户网站的熟悉程度，并引出他们对该门户网站支持1型糖尿病自我管理有用性的看法。研究结果初步了解了患有1型糖尿病的新兴成年人样本如何使用、认识到其益处以及希望如何改进糖尿病自我管理技术。
