Akyirem Samuel, Wagner Julie, Chen Helen N, Lipson Joanna, Minchala Maritza, Cortez Karina, Whittemore Robin
Yale School of Nursing, Yale University, West Haven, CT, United States.
Behavioral Sciences and Community Health, School of Dental Medicine, University of Connecticut, Farmington, CT, United States.
JMIR Diabetes. 2024 Sep 16;9:e58526. doi: 10.2196/58526.
Community health centers (CHCs) are safety-net health care facilities in the United States that provide care for a substantial number of low-income, non-English speaking adults with type 2 diabetes (T2D). Whereas patient portals have been shown to be associated with significant improvements in diabetes self-management and outcomes, they remain underused in CHCs. In addition, little is known about the specific barriers to and facilitators of patient portal use in CHCs and strategies to address the barriers.
The objectives of this qualitative study were to explore the barriers to and facilitators of the use of patient portals for managing diabetes in 2 CHCs from the perspective of adults with T2D and clinicians (community health workers, nurses, nurse practitioners, and physicians) and to make recommendations on strategies to enhance use.
A qualitative description design was used. A total of 21 participants (n=13, 62% clinicians and n=8, 38% adults with T2D) were purposively and conveniently selected from 2 CHCs. Adults with T2D were included if they were an established patient of one of the partner CHCs, aged ≥18 years, diagnosed with T2D ≥6 months, and able to read English or Spanish. Clinicians at our partner CHCs who provided care or services for adults with T2D were eligible for this study. Semistructured interviews were conducted in either Spanish or English based on participant preference. Interviews were audio-recorded and transcribed. Spanish interviews were translated into English by a bilingual research assistant. Data were collected between October 5, 2022, and March 16, 2023. Data were analyzed using a rapid content analysis method. Standards of rigor were implemented.
Themes generated from interviews included perceived usefulness and challenges of the patient portal, strategies to improve patient portal use, and challenges in diabetes self-management. Participants were enthusiastic about the potential of the portal to improve access to health information and patient-clinician communication. However, challenges of health and technology literacy, maintaining engagement, and clinician burden were identified. Standardized implementation strategies were recommended to raise awareness of patient portal benefits, provide simplified training and technology support, change clinic workflow to triage messages, customize portal notification messages, minimize clinician burden, and enhance the ease with which blood glucose data can be uploaded into the portal.
Adults with T2D and clinicians at CHCs continue to report pervasive challenges to patient portal use in CHCs. Providing training and technical support on patient portal use for patients with low health literacy at CHCs is a critical next step. Implementing standardized patient portal strategies to address the unique needs of patients receiving care at CHCs also has the potential to improve health equity and health outcomes associated with patient portal use.
社区卫生中心(CHCs)是美国的安全网医疗保健机构,为大量低收入、非英语的2型糖尿病(T2D)成人患者提供护理。尽管患者门户网站已被证明与糖尿病自我管理和治疗效果的显著改善相关,但在社区卫生中心仍未得到充分利用。此外,对于社区卫生中心使用患者门户网站的具体障碍和促进因素以及解决这些障碍的策略知之甚少。
本定性研究的目的是从T2D成人患者和临床医生(社区卫生工作者、护士、执业护士和医生)的角度探讨在两家社区卫生中心使用患者门户网站管理糖尿病的障碍和促进因素,并就加强使用的策略提出建议。
采用定性描述设计。从两家社区卫生中心有目的地、方便地选取了21名参与者(n = 13,62%为临床医生;n = 8,38%为T2D成人患者)。如果T2D成人患者是合作社区卫生中心之一的现有患者,年龄≥18岁,确诊T2D≥6个月,并且能够阅读英语或西班牙语,则纳入研究。为T2D成人患者提供护理或服务的合作社区卫生中心的临床医生符合本研究的条件。根据参与者的偏好,以西班牙语或英语进行半结构化访谈。访谈进行录音并转录。西班牙语访谈由一名双语研究助理翻译成英语。数据收集于2022年10月5日至2023年3月16日之间。使用快速内容分析法对数据进行分析。实施了严格性标准。
访谈产生的主题包括患者门户网站的感知有用性和挑战、改善患者门户网站使用的策略以及糖尿病自我管理中的挑战。参与者对门户网站改善获取健康信息和患者与临床医生沟通的潜力充满热情。然而,确定了健康和技术素养、保持参与度以及临床医生负担等挑战。建议采用标准化的实施策略,以提高对患者门户网站益处的认识,提供简化的培训和技术支持,改变诊所工作流程以对信息进行分类,定制门户网站通知信息,最小化临床医生负担,并提高将血糖数据上传到门户网站的便捷性。
社区卫生中心的T2D成人患者和临床医生继续报告在社区卫生中心使用患者门户网站存在普遍挑战。为社区卫生中心健康素养较低的患者提供患者门户网站使用方面的培训和技术支持是关键的下一步。实施标准化的患者门户网站策略以满足在社区卫生中心接受护理的患者的独特需求,也有可能改善与患者门户网站使用相关的健康公平性和健康结果。