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在资源有限的地区建立癌症登记处:来自加纳的经验过程。

Establishing a Cancer Registry in a Resource-Constrained Region: Process Experience From Ghana.

机构信息

Accra Cancer Registry, Accra, Ghana.

National Centre for Radiotherapy and Nuclear Medicine, Accra, Ghana.

出版信息

JCO Glob Oncol. 2020 Apr;6:610-616. doi: 10.1200/JGO.19.00387.

DOI:10.1200/JGO.19.00387
PMID:32302237
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7193799/
Abstract

PURPOSE

In a review of cancer incidence across continents (GLOBOCAN 2012), data sources from Ghana were classified as Frequencies, the lowest classification for inclusion, signifying the worst data quality for inclusion in the analysis. Recognizing this deficiency, the establishment of a population-based cancer registry was proposed as part of a broader cancer control plan.

METHODS

The registry was examined under the following headings: policy, data source, and administrative structure; external support and training; and definition of geographic coverage.

RESULTS

The registry was set up based on the Ghana policy document on the strategy for cancer control. The paradigm shift ensured subscription to one data collection software (CanReg 5) in the country. The current approach consists of trained registrars based in the registry who conduct active data abstraction at the departments and units of the hospital and pathologic services. To ensure good governance, an administrative structure was created, including an advisory board, a technical committee, and registry staff. External support for the establishment of the Accra Cancer Registry has come mainly from Stanford University and the African Cancer Registry Network, in collaboration with the University of Ghana. Unlike previous attempts, this registry has a well-defined population made up of nine municipal districts.

CONCLUSION

The Accra Cancer Registry was established as a result of the lessons learned from failed previous attempts and aim to provide a model for setting up other cancer registries in Ghana. It will eventually be the focal point where all the national data can be collated.

摘要

目的

在对各大洲癌症发病率的回顾(GLOBOCAN 2012)中,加纳的数据来源被归类为频率,这是纳入分析的最低分类,表明纳入分析的数据质量最差。认识到这一缺陷,提出建立基于人群的癌症登记处作为更广泛的癌症控制计划的一部分。

方法

该登记处根据以下标题进行了检查:政策、数据源和管理结构;外部支持和培训;以及地理覆盖范围的定义。

结果

该登记处是根据加纳癌症控制战略政策文件设立的。范式转变确保了该国订阅一个数据收集软件(CanReg 5)。目前的方法包括在登记处工作的经过培训的登记员,他们在医院和病理服务部门的科室和单位进行主动数据提取。为了确保良好的治理,创建了一个管理结构,包括一个咨询委员会、一个技术委员会和登记处工作人员。建立阿克拉癌症登记处的外部支持主要来自斯坦福大学和非洲癌症登记网络,与加纳大学合作。与以前的尝试不同,这个登记处有一个明确界定的人口,由九个直辖市组成。

结论

阿克拉癌症登记处是在吸取以往失败尝试的教训的基础上建立的,旨在为加纳其他癌症登记处的建立提供一个模式。它最终将成为可以整理所有国家数据的焦点。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6434/7193799/7b867070aae4/JGO.19.00387f2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6434/7193799/da0e3e3df7df/JGO.19.00387f1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6434/7193799/7b867070aae4/JGO.19.00387f2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6434/7193799/da0e3e3df7df/JGO.19.00387f1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6434/7193799/7b867070aae4/JGO.19.00387f2.jpg

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