Department of Pediatrics, Emory University, Atlanta, Georgia, USA; Aflac Cancer and Blood Disorders Center of Children's Healthcare of Atlanta, Atlanta, Georgia, USA; Pediatric Palliative Care, Children's Healthcare of Atlanta, Atlanta, Georgia, USA.
Aflac Cancer and Blood Disorders Center of Children's Healthcare of Atlanta, Atlanta, Georgia, USA.
J Pain Symptom Manage. 2020 Sep;60(3):531-538.e8. doi: 10.1016/j.jpainsymman.2020.04.004. Epub 2020 Apr 15.
Prior studies have indicated that pediatric palliative care (PPC) resources vary across states and within regions in a state. Evaluating the current status of PPC and pediatric hospice care through a community needs assessment (CNA) can help address the gaps that exist to improve and increase access to PPC for children in need.
Using the state of Georgia as an example, the process, methods, lessons learned, and limitations in conducting a statewide PPC CNA are described.
A mixed-method descriptive design with multiple stages incorporating different methodological approaches was used. These included literature review, community profile, survey and interview questionnaire development, windshield survey, identifying and interviewing key informants, and quantitative survey of the state's hospice organizations. Key themes (providing PPC, PPC environment, collaboration, and future of PPC) and subthemes emerged, which were then triangulated across all existing data collection techniques to provide recommendations of varying feasibility and importance.
Described in a subsequent article (Johnson K.A. et al.).
This approach can be used by other state organizations, coalitions, governments, or national organizations looking to perform a CNA of palliative care, hospice resources, or could be applied to other geographical settings or types of care.
先前的研究表明，儿科舒缓治疗（PPC）资源在各州之间以及州内的不同地区存在差异。通过社区需求评估（CNA）评估当前的 PPC 和儿科临终关怀护理状况，可以帮助解决存在的差距，为有需要的儿童改善和增加 PPC 的可及性。
以佐治亚州为例，描述了在全州范围内进行 PPC CNA 的过程、方法、经验教训和局限性。
采用了混合方法描述性设计，包括多个阶段，采用了不同的方法学方法。这些方法包括文献回顾、社区概况、调查和访谈问卷制定、挡风玻璃调查、确定和访谈关键信息提供者，以及对州内临终关怀组织的定量调查。出现了主要主题（提供 PPC、PPC 环境、协作和 PPC 的未来）和子主题，然后通过所有现有数据收集技术进行三角测量，以提供不同可行性和重要性的建议。
在后续文章（Johnson K.A.等人）中进行了描述。
其他州组织、联盟、政府或国家组织希望进行姑息治疗、临终关怀资源的 CNA，或者可以将其应用于其他地理环境或护理类型，可以采用这种方法。
