Stockholm Centre for Eating Disorders, Wollmar Yxkullsgatan 27B, 118 50, Stockholm, Sweden.
Centre for Psychiatry Research, Department of Clinical Neuroscience, Karolinska Institutet, & Stockholm Health Care Services, Stockholm County Council, 171 77, Stockholm, Sweden.
BMC Med Ethics. 2020 Apr 19;21(1):29. doi: 10.1186/s12910-020-00472-8.
Traditionally, palliative care has focused on patients suffering from life-threatening somatic diseases such as cancer or progressive neurological disorders. In contrast, despite the often chronic, severely disabling, and potentially life-threatening nature of psychiatric disorders, there are neither palliative care units nor clinical guidelines on palliative measures for patients in psychiatry.
This paper contributes to the growing literature on a palliative approach in psychiatry and is based on the assumption that a change of perspective from a curative to a palliative approach could help promote patient-centeredness and increase quality of life for severely ill patients in psychiatry as well as in somatic medicine. To exemplify this, we offer three different clinical scenarios: severe and enduring anorexia nervosa, treatment-refractory schizophrenia, and chronic suicidality and persistent self-injury in borderline personality disorder.
We emphasize that many typical interventions for treatment-refractory psychiatric disorders may indeed be of a palliative nature. Furthermore, introducing traditional features of palliative care, e.g. so-called goals of care conversations, could aid even further in ensuring that caregivers, patients, and families agree on which treatment goals are to be prioritized in order to optimize quality of life in spite of severe, persistent mental disorder.
传统上,姑息治疗主要关注患有危及生命的躯体疾病(如癌症或进行性神经疾病)的患者。相比之下,尽管精神障碍常常具有慢性、严重致残和潜在的致命性,但精神科既没有姑息治疗病房,也没有姑息措施的临床指南。
本文为精神科姑息治疗方法的不断发展的文献做出了贡献,并基于这样一种假设,即从治疗方法到姑息方法的观点转变可以帮助促进以患者为中心,并提高精神科和躯体医学中重病患者的生活质量。为了举例说明这一点,我们提供了三种不同的临床情况:严重和持久的神经性厌食症、治疗抵抗性精神分裂症以及边缘性人格障碍中的慢性自杀意念和持续自伤。
我们强调,许多针对治疗抵抗性精神障碍的典型干预措施实际上可能具有姑息性质。此外,引入姑息治疗的传统特征,例如所谓的治疗目标对话,可以进一步帮助确保护理人员、患者和家属就应优先考虑哪些治疗目标达成一致,从而优化生活质量,尽管存在严重、持续的精神障碍。