智障与发展障碍者的复合手足照顾者。
Compound sibling caregivers of individuals with intellectual and developmental disabilities.
机构信息
Vanderbilt University Medical Center, Nashville, TN, USA.
University of Illinois at Urbana-Champaign, Champaign, IL, USA.
出版信息
J Appl Res Intellect Disabil. 2020 Sep;33(5):1069-1079. doi: 10.1111/jar.12729. Epub 2020 Mar 19.
BACKGROUND
Given the increasing lifespans of individuals with intellectual and developmental disabilities (IDD), siblings may fulfil multiple caregiving roles simultaneously for their ageing parents, their offspring, and their brother or sister with IDD. Yet, little is known about compound sibling caregivers. The purpose of this study was to compare the perspectives of compound, single and non-caregiving siblings of adults with IDD.
METHOD
This study investigated 332 adult siblings of individuals with IDD in the United States via a national web-based survey. Participants included: 152 non-caregivers, 94 single caregivers (i.e., caregivers only for their brothers and sisters with IDD), and 86 compound caregivers (i.e., caregivers for their brothers and sisters with IDD and at least one other vulnerable individual).
RESULTS
Single and compound sibling caregivers (versus non-caregivers) had more positive relationships and conducted greater advocacy and future planning activities.
CONCLUSIONS
Given the potential for compound sibling caregiving, further investigation is warranted.
背景
鉴于智障和发育障碍（IDD）患者的寿命不断延长，兄弟姐妹可能会同时为他们年迈的父母、自己的子女以及有 IDD 的兄弟姐妹承担多种照顾责任。然而，人们对复合兄弟姐妹照顾者知之甚少。本研究的目的是比较成年 IDD 患者的复合、单一和非照顾兄弟姐妹的观点。
方法
本研究通过一项全国性的网络调查，调查了美国 332 名智障成年患者的兄弟姐妹。参与者包括：152 名非照顾者、94 名单一照顾者（即仅照顾智障兄弟姐妹的人）和 86 名复合照顾者（即照顾智障兄弟姐妹和至少一名其他弱势群体的人）。
结果
单一和复合兄弟姐妹照顾者（与非照顾者相比）有更积极的关系，并进行了更多的倡导和未来规划活动。
结论
鉴于复合兄弟姐妹照顾的可能性，有必要进行进一步的调查。
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