Vanderbilt University, Vanderbilt Kennedy Center and Department of Special Education, Nashville, TN 37203, USA.
Am J Intellect Dev Disabil. 2012 Jan;117(1):33-47. doi: 10.1352/1944-7558-117.1.33.
With the growing life expectancy for individuals with intellectual and developmental disabilities, siblings will increasingly assume responsibility for the care of their brother or sister with intellectual and developmental disabilities. Using a 163-item survey completed by 757 siblings, the authors identified factors related to future caregiving expectations. Siblings expected to assume greater caregiving responsibility for their brother or sister with disabilities if they were female, had closer relationships with and lived closer to their brother or sister with intellectual and developmental disabilities, and were the lone sibling without a disability. Siblings who expected to assume higher levels of caregiving had parents who were currently more able to care for their brother or sister with disabilities. With a better understanding of who intends to fulfill future caregiving roles, support can be provided to these siblings.
随着智障和发育障碍患者的预期寿命不断延长,兄弟姐妹将越来越多地承担起照顾智障和发育障碍兄弟姐妹的责任。本文作者使用一份包含 163 个项目的调查问卷,对 757 名智障和发育障碍患者的兄弟姐妹进行了调查,以确定与未来照顾期望相关的因素。调查发现,如果兄弟姐妹是女性,与智障和发育障碍兄弟姐妹的关系更密切,且居住距离更近,同时又是家中没有残疾兄弟姐妹的独生子或独生女,那么他们更有可能承担起照顾残疾兄弟姐妹的责任。此外,那些预计将承担更高水平的照顾责任的兄弟姐妹,其父母目前更有能力照顾残疾兄弟姐妹。通过更好地了解谁打算履行未来的照顾角色,可以为这些兄弟姐妹提供支持。