Faculty of Nursing, University of Calgary,, Alberta, Canada.
Faculty of Nursing, Departments of Paediatrics and Community Health Sciences, Cumming School of Medicine, University of Calgary, Alberta, Canada.
J Pediatr Nurs. 2020 Jul-Aug;53:14-21. doi: 10.1016/j.pedn.2020.04.016. Epub 2020 Apr 24.
To understand contemporary experiences of pediatric health care professionals' (HCPs) caring for hospitalized Medically Fragile Infants (MFI) and their parents.
Convenience sampling was adopted to recruit 26 HCPs who provided care to MFI and their parents on inpatient units at a large tertiary pediatric hospital in Western Canada. Participants participated in either a focus group or individual face-to-face interview. Themes and concepts emerged during open and focused coding.
HCPs encountered barriers to establishing relationships with parents, including: (a) intricate nature of MFI, (b) lack of social supports, (c) inconsistency, (d) moral distress, (e) burnout, and (f) struggle to gain control. HCPs utilized strategies to establish relationships with parents, including: (a) normalizing and building parental confidence, (b) tailoring care and being flexible, (c) providing parent care, and (d) optimizing communication.
HCPs aimed to establish relationships built on trust with parents of MFI to empower and enable parents to care for their infants. The relationship was the vehicle to enhance the care provided and well-being of MFI. HCPs encountered barriers to establishing trusting relationships and utilized strategies to establish such relationships.
It is valuable to understand the importance that the parent-HCPs relationship plays in the care provided to hospitalized MFI and how lack thereof can lead to moral distress and burnout among HCPs. Increasing HCPs' awareness of barriers and strategies to the establishment of a trusting relationship with parents could help improve the collaborative relationship between parents and HCPs.
了解儿科医护人员（HCP）照顾住院的脆弱婴儿（MFI）及其父母的当代经验。
采用便利抽样法招募了 26 名 HCP，他们在加拿大西部一家大型儿科三甲医院的住院病房为 MFI 及其父母提供护理。参与者参加了焦点小组或单独的面对面访谈。在开放和重点编码过程中出现了主题和概念。
HCP 在与父母建立关系方面遇到了障碍，包括：（a）MFI 的复杂性质，（b）缺乏社会支持，（c）不一致，（d）道德困境，（e）倦怠，以及（f）难以控制。HCP 采用了与父母建立关系的策略，包括：（a）使父母感到安心并增强他们的信心，（b）量身定制护理并保持灵活性，（c）提供父母护理，以及（d）优化沟通。
HCP 旨在与 MFI 的父母建立基于信任的关系，以使父母能够为婴儿提供护理并赋予他们权力。这种关系是增强 MFI 护理和福祉的手段。HCP 在建立信任关系方面遇到了障碍，并采用了建立这种关系的策略。
了解父母-HCP 关系在为住院 MFI 提供护理中的重要性以及缺乏这种关系如何导致 HCP 出现道德困境和倦怠感是很有价值的。提高 HCP 对与父母建立信任关系的障碍和策略的认识，可以帮助改善父母和 HCP 之间的合作关系。
