• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

卫生数据管理系统在生物医学保健和研究中的要求:范围综述。

Requirements of Health Data Management Systems for Biomedical Care and Research: Scoping Review.

机构信息

Department of Computer Science and Software Engineering, College of Information Technology, United Arab Emirates University, Al Ain, Abu Dhabi, United Arab Emirates.

Faculty of Informatics, Furtwangen University, Furtwangen, Germany.

出版信息

J Med Internet Res. 2020 Jul 7;22(7):e17508. doi: 10.2196/17508.

DOI:10.2196/17508
PMID:32348265
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7380987/
Abstract

BACKGROUND

Over the last century, disruptive incidents in the fields of clinical and biomedical research have yielded a tremendous change in health data management systems. This is due to a number of breakthroughs in the medical field and the need for big data analytics and the Internet of Things (IoT) to be incorporated in a real-time smart health information management system. In addition, the requirements of patient care have evolved over time, allowing for more accurate prognoses and diagnoses. In this paper, we discuss the temporal evolution of health data management systems and capture the requirements that led to the development of a given system over a certain period of time. Consequently, we provide insights into those systems and give suggestions and research directions on how they can be improved for a better health care system.

OBJECTIVE

This study aimed to show that there is a need for a secure and efficient health data management system that will allow physicians and patients to update decentralized medical records and to analyze the medical data for supporting more precise diagnoses, prognoses, and public insights. Limitations of existing health data management systems were analyzed.

METHODS

To study the evolution and requirements of health data management systems over the years, a search was conducted to obtain research articles and information on medical lawsuits, health regulations, and acts. These materials were obtained from the Institute of Electrical and Electronics Engineers, the Association for Computing Machinery, Elsevier, MEDLINE, PubMed, Scopus, and Web of Science databases.

RESULTS

Health data management systems have undergone a disruptive transformation over the years from paper to computer, web, cloud, IoT, big data analytics, and finally to blockchain. The requirements of a health data management system revealed from the evolving definitions of medical records and their management are (1) medical record data, (2) real-time data access, (3) patient participation, (4) data sharing, (5) data security, (6) patient identity privacy, and (7) public insights. This paper reviewed health data management systems based on these 7 requirements across studies conducted over the years. To our knowledge, this is the first analysis of the temporal evolution of health data management systems giving insights into the system requirements for better health care.

CONCLUSIONS

There is a need for a comprehensive real-time health data management system that allows physicians, patients, and external users to input their medical and lifestyle data into the system. The incorporation of big data analytics will aid in better prognosis or diagnosis of the diseases and the prediction of diseases. The prediction results will help in the development of an effective prevention plan.

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/95f7/7380987/6c0755a12535/jmir_v22i7e17508_fig4.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/95f7/7380987/42bf51b3d8c9/jmir_v22i7e17508_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/95f7/7380987/b7b398997b42/jmir_v22i7e17508_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/95f7/7380987/76e97fdbf1bf/jmir_v22i7e17508_fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/95f7/7380987/6c0755a12535/jmir_v22i7e17508_fig4.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/95f7/7380987/42bf51b3d8c9/jmir_v22i7e17508_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/95f7/7380987/b7b398997b42/jmir_v22i7e17508_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/95f7/7380987/76e97fdbf1bf/jmir_v22i7e17508_fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/95f7/7380987/6c0755a12535/jmir_v22i7e17508_fig4.jpg
摘要

背景

在上个世纪,临床和生物医学研究领域的破坏性事件导致了医疗数据管理系统的巨大变革。这是由于医学领域的一些突破以及将大数据分析和物联网 (IoT) 纳入实时智能健康信息管理系统的需要。此外,随着时间的推移,对患者护理的要求也在不断发展,从而能够进行更准确的预后和诊断。在本文中,我们讨论了医疗数据管理系统的时间演变,并捕捉到了导致特定系统在特定时间段内发展的要求。因此,我们深入了解了这些系统,并就如何改进它们以改善医疗保健系统提供了建议和研究方向。

目的

本研究旨在表明需要一个安全有效的医疗数据管理系统,使医生和患者能够更新分散的医疗记录,并分析医疗数据以支持更精确的诊断、预后和公共洞察。分析了现有医疗数据管理系统的局限性。

方法

为了研究多年来医疗数据管理系统的演变和要求,我们进行了搜索,以获取有关医疗诉讼、医疗法规和法案的研究文章和信息。这些材料是从电气和电子工程师协会、计算机协会、爱思唯尔、MEDLINE、PubMed、Scopus 和 Web of Science 数据库中获得的。

结果

多年来,医疗数据管理系统经历了从纸质到计算机、网络、云、物联网、大数据分析,最终到区块链的颠覆性转变。从不断演变的病历及其管理定义中揭示的医疗数据管理系统的要求是 (1) 病历数据,(2) 实时数据访问,(3) 患者参与,(4) 数据共享,(5) 数据安全,(6) 患者身份隐私,(7) 公共洞察。本文根据多年来进行的研究,基于这 7 项要求对医疗数据管理系统进行了回顾。据我们所知,这是对医疗数据管理系统时间演变的首次分析,深入了解了更好的医疗保健系统的系统要求。

结论

需要一个全面的实时医疗数据管理系统,允许医生、患者和外部用户将他们的医疗和生活方式数据输入系统。大数据分析的纳入将有助于更好地预测或诊断疾病,并预测疾病。预测结果将有助于制定有效的预防计划。

相似文献

1
Requirements of Health Data Management Systems for Biomedical Care and Research: Scoping Review.卫生数据管理系统在生物医学保健和研究中的要求:范围综述。
J Med Internet Res. 2020 Jul 7;22(7):e17508. doi: 10.2196/17508.
2
ACTION-EHR: Patient-Centric Blockchain-Based Electronic Health Record Data Management for Cancer Care.ACTION-EHR:基于区块链的以患者为中心的电子健康记录数据管理系统在癌症护理中的应用。
J Med Internet Res. 2020 Aug 21;22(8):e13598. doi: 10.2196/13598.
3
The Security of Big Data in Fog-Enabled IoT Applications Including Blockchain: A Survey.雾计算环境下物联网应用中大数据的安全性:一项调查。
Sensors (Basel). 2019 Apr 14;19(8):1788. doi: 10.3390/s19081788.
4
A Scoping Review of Integrated Blockchain-Cloud (BcC) Architecture for Healthcare: Applications, Challenges and Solutions.综合区块链-云 (BcC) 架构在医疗保健中的应用、挑战与解决方案:综述
Sensors (Basel). 2021 May 28;21(11):3753. doi: 10.3390/s21113753.
5
User Control of Personal mHealth Data Using a Mobile Blockchain App: Design Science Perspective.用户使用移动区块链应用程序控制个人健康数据:设计科学视角。
JMIR Mhealth Uhealth. 2022 Jan 20;10(1):e32104. doi: 10.2196/32104.
6
A Decentralized Privacy-Preserving Healthcare Blockchain for IoT.物联网去中心化隐私保护医疗区块链
Sensors (Basel). 2019 Jan 15;19(2):326. doi: 10.3390/s19020326.
7
Blockchain Integration With Digital Technology and the Future of Health Care Ecosystems: Systematic Review.区块链与数字技术融合与医疗保健生态系统的未来:系统评价。
J Med Internet Res. 2021 Nov 2;23(11):e19846. doi: 10.2196/19846.
8
Folic acid supplementation and malaria susceptibility and severity among people taking antifolate antimalarial drugs in endemic areas.在流行地区,服用抗叶酸抗疟药物的人群中,叶酸补充剂与疟疾易感性和严重程度的关系。
Cochrane Database Syst Rev. 2022 Feb 1;2(2022):CD014217. doi: 10.1002/14651858.CD014217.
9
Secure Collaborative Platform for Health Care Research in an Open Environment: Perspective on Accountability in Access Control.安全的开放环境下医疗保健研究协作平台:访问控制中的问责制视角。
J Med Internet Res. 2022 Oct 14;24(10):e37978. doi: 10.2196/37978.
10
Smart Home-based IoT for Real-time and Secure Remote Health Monitoring of Triage and Priority System using Body Sensors: Multi-driven Systematic Review.基于智能家居的物联网,利用身体传感器实现分诊和优先级系统的实时安全远程健康监测:多驱动系统评价。
J Med Syst. 2019 Jan 15;43(3):42. doi: 10.1007/s10916-019-1158-z.

引用本文的文献

1
Implementation of a digital coordination centre in a hospital: a qualitative evaluation of enablers, barriers and strategies.医院数字协调中心的实施:对促成因素、障碍和策略的定性评估
BMC Health Serv Res. 2025 Sep 3;25(1):1185. doi: 10.1186/s12913-025-13343-y.
2
Integrating mHealth Innovations into Decentralized Oncology Trials.将移动健康创新融入去中心化肿瘤学试验。
J Med Syst. 2025 Aug 8;49(1):103. doi: 10.1007/s10916-025-02233-9.
3
Global trends of big data analytics in health research: a bibliometric study.健康研究中大数据分析的全球趋势:一项文献计量学研究。

本文引用的文献

1
Internet of Things Applied in Healthcare Based on Open Hardware with Low-Energy Consumption.基于低功耗开源硬件的物联网在医疗保健中的应用
Healthc Inform Res. 2019 Jul;25(3):230-235. doi: 10.4258/hir.2019.25.3.230. Epub 2019 Jul 31.
2
IoT with cloud based lung cancer diagnosis model using optimal support vector machine.基于云的肺癌诊断模型的物联网使用最优支持向量机。
Health Care Manag Sci. 2020 Dec;23(4):670-679. doi: 10.1007/s10729-019-09489-x. Epub 2019 Jul 20.
3
Scalable and accurate deep learning with electronic health records.
Front Med (Lausanne). 2025 Jul 1;12:1456286. doi: 10.3389/fmed.2025.1456286. eCollection 2025.
4
The open sharing operation mechanism of health data in the digital healthcare era: A study based on grounded theory and interpretative structural modeling method.数字医疗时代健康数据的开放共享运行机制:基于扎根理论和解释结构模型法的研究
Digit Health. 2025 Jun 25;11:20552076251353694. doi: 10.1177/20552076251353694. eCollection 2025 Jan-Dec.
5
Optimizing Clinical Decision Support System Functionality by Leveraging Specific Human-Computer Interaction Elements: Insights From a Systematic Review.通过利用特定人机交互元素优化临床决策支持系统功能:系统评价的见解
JMIR Hum Factors. 2025 May 6;12:e69333. doi: 10.2196/69333.
6
Physicians and AI in healthcare: insights from a mixed-methods study in Poland on adoption and challenges.医疗保健领域的医生与人工智能:来自波兰一项关于采用情况和挑战的混合方法研究的见解
Front Digit Health. 2025 Mar 14;7:1556921. doi: 10.3389/fdgth.2025.1556921. eCollection 2025.
7
Health data management practice and associated factors among health professionals working in public health facilities in Oromia Special Zone, Amhara, Ethiopia: a cross-sectional study.埃塞俄比亚阿姆哈拉州奥罗米亚特别区公共卫生设施中卫生专业人员的健康数据管理实践及相关因素:一项横断面研究。
BMJ Public Health. 2024 Jul 31;2(1):e000807. doi: 10.1136/bmjph-2023-000807. eCollection 2024 Jun.
8
NeoVault: empowering neonatal research through a neonate data hub.NeoVault:通过新生儿数据中心为新生儿研究提供支持。
BMC Pediatr. 2024 Nov 30;24(1):787. doi: 10.1186/s12887-024-05276-y.
9
System-wide analysis of qualitative hospital incident data: Feasibility of semi-automated content analysis to uncover insights.医院定性事件数据的全系统分析:半自动内容分析以揭示见解的可行性。
Health Inf Manag. 2025 Sep;54(3):247-254. doi: 10.1177/18333583241299433. Epub 2024 Nov 23.
10
Strengths and weaknesses of computerized clinical decision support systems: insights from a digital control center (C3 COVID-19) for early and personalized treatment for COVID-19.计算机化临床决策支持系统的优势与不足:来自一个用于新冠病毒病早期个性化治疗的数字控制中心(C3 COVID-19)的见解
Rev Esp Quimioter. 2025 Feb;38(1):1-7. doi: 10.37201/req/088.2024. Epub 2024 Oct 29.
借助电子健康记录实现可扩展且准确的深度学习。
NPJ Digit Med. 2018 May 8;1:18. doi: 10.1038/s41746-018-0029-1. eCollection 2018.
4
An Integrative Framework for Online Prognostic and Health Management Using Internet of Things and Convolutional Neural Network.一种使用物联网和卷积神经网络的在线预后与健康管理综合框架。
Sensors (Basel). 2019 May 21;19(10):2338. doi: 10.3390/s19102338.
5
Efficient learning from big data for cancer risk modeling: A case study with melanoma.从大数据中高效学习进行癌症风险建模:以黑色素瘤为例的研究。
Comput Biol Med. 2019 Jul;110:29-39. doi: 10.1016/j.compbiomed.2019.04.039. Epub 2019 Apr 30.
6
Building Caring Healthcare Systems in the Internet of Things.构建物联网中的关爱型医疗系统。
IEEE Syst J. 2018;12(3). doi: 10.1109/JSYST.2017.2662602.
7
IoT in Healthcare: Achieving Interoperability of High-Quality Data Acquired by IoT Medical Devices.物联网在医疗保健中的应用:实现物联网医疗设备获取的高质量数据的互操作性。
Sensors (Basel). 2019 Apr 27;19(9):1978. doi: 10.3390/s19091978.
8
An Assessment of the Interoperability of Electronic Health Record Exchanges Among Hospitals and Clinics in Taiwan.台湾地区医院与诊所间电子病历交换的互操作性评估
JMIR Med Inform. 2019 Mar 28;7(1):e12630. doi: 10.2196/12630.
9
An Internet-of-Things (IoT) Network System for Connected Safety and Health Monitoring Applications.物联网(IoT)网络系统用于连接的安全和健康监测应用。
Sensors (Basel). 2018 Dec 21;19(1):21. doi: 10.3390/s19010021.
10
The Internet of Things in Health Care in Oxford: Protocol for Proof-of-Concept Projects.牛津医疗保健领域的物联网:概念验证项目协议
JMIR Res Protoc. 2018 Dec 4;7(12):e12077. doi: 10.2196/12077.