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光皮病患者生活质量和心理影响的研究综述——由阳光引发的皮肤疾病。

A review of studies looking at quality of life and psychological impact in people with photodermatoses - skin diseases triggered by sunlight.

出版信息

Br J Dermatol. 2020 May;182(5):e161-e182. doi: 10.1111/bjd.18987.

DOI:10.1111/bjd.18987
PMID:32359112
Abstract

Photodermatoses, or photosensitivity conditions, are a group of skin disorders caused by exposure to sunlight, overall affecting a large number of people. They cause a range of distressing symptoms including pain and burn, and can make the skin blister, flake and scar. The conditions themselves and the need for patients to avoid and protect themselves from sunlight may affect quality of life and psychological health. This study, from the U.K., aimed to find out what methods of assessment (tools) have been used to evaluate quality of life and psychological health in photodermatoses, and report what the impact is for patients. The authors reviewed relevant published English-language studies and summarised their findings. 20 studies were included: 19 assessing quality of life and three assessing psychological function. Six different tools had been used to assess quality of life, and four different tools to assess psychological health. It was shown that 31-39% of patients with photodermatoses experienced a very large impact on their quality of life. There was a particular impact on issues related to employment, social/leisure activities and clothing choices. Patients had around double the rates of anxiety and depression found in the general population, although few studies focussed on psychological health. The authors also noted that most available tools were not designed to address the unique impact of intermittent sunlight-induced skin conditions and suggested that development of more specific tools could be beneficial. In conclusion, this study confirmed that patients with photodermatoses experience substantial impact on their quality of life and that more research is needed. This is a summary of the study: Quality of life and psychological impact in the photodermatoses: a systematic review.

摘要

光线性皮肤病,或光敏性疾病,是一组由暴露在阳光下引起的皮肤疾病,总体上影响了大量人群。它们会引起一系列令人不适的症状,包括疼痛和灼伤,并可能导致皮肤起疱、剥落和疤痕。这些疾病本身以及患者需要避免和保护自己免受阳光照射,可能会影响生活质量和心理健康。这项来自英国的研究旨在了解评估(工具)方法已被用于评估光线性皮肤病患者的生活质量和心理健康,并报告对患者的影响。作者回顾了相关的已发表的英语文献,并总结了他们的发现。共纳入了 20 项研究:19 项评估生活质量,3 项评估心理功能。有 6 种不同的工具被用于评估生活质量,4 种不同的工具用于评估心理健康。结果表明,31-39%的光线性皮肤病患者的生活质量受到了非常大的影响。这对与就业、社会/休闲活动和服装选择有关的问题产生了特别的影响。患者的焦虑和抑郁发生率是一般人群的两倍左右,尽管很少有研究关注心理健康。作者还指出,大多数现有的工具并不是为了解决间歇性阳光引起的皮肤状况的独特影响而设计的,因此开发更具针对性的工具可能会有所帮助。总之,这项研究证实了光线性皮肤病患者的生活质量受到了很大的影响,需要进一步的研究。这是对该研究的总结:光线性皮肤病的生活质量和心理影响:系统综述。

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