Cancer Control and Population Sciences Department, Huntsman Cancer Institute, Salt Lake City, Utah, USA.
College of Nursing, University of Utah, Salt Lake City, Utah, USA.
Psychooncology. 2020 Jul;29(7):1185-1192. doi: 10.1002/pon.5402. Epub 2020 May 19.
To describe how young adult cancer caregivers (YACC) use social media for social support during a cancer experience.
Eligible YACC were 18 to 39 years, used Facebook and/or Instagram at least once per week, and cared for an adult cancer patient diagnosed 6 months to 5 years prior (N = 34). Recruitment of a cross-sectional sample occurred through oncology clinics in Utah and online advertising by caregiving and cancer organizations from September 2017 to June 2018. Semi-structured telephone interviews were recorded, transcribed, iteratively coded, and qualitatively analyzed, yielding four categories concerning how YACC use social media.
Caregivers were most commonly spouses aged 29 years on average (range 21-38); cancer patients were 37 years (range 19-76). Analysis yielded four distinct yet related categories: Category 1: Posting about cancer on social media often begins as a strategy for YACC to efficiently provide updates about the cancer patient. Category 2: Caregivers who actively post on social media experience a variety of different functional social supports to which they otherwise would not have access. Category 3: Posting about cancer online presents an opportunity for negative consequences. Category 4: Potential for negative consequences influences how some caregivers use social media.
Supportive services, including social media-based supports, are needed for YACC in formats that are convenient for them as they balance their caretaking duties with their daily lives.
描述青年癌症照护者（YACC）在癌症经历中如何使用社交媒体获取社会支持。
符合条件的 YACC 年龄在 18 至 39 岁之间，每周至少使用一次 Facebook 和/或 Instagram，并且在 6 个月至 5 年前照顾过成年癌症患者（N=34）。通过犹他州的肿瘤诊所和护理及癌症组织的在线广告招募横断面样本，招募时间为 2017 年 9 月至 2018 年 6 月。对电话访谈进行录音、转录、迭代编码和定性分析，产生了四个关于 YACC 使用社交媒体的类别。
照护者通常是年龄 29 岁的配偶（年龄范围为 21-38 岁）；癌症患者年龄为 37 岁（年龄范围为 19-76 岁）。分析得出了四个不同但相关的类别：类别 1：在社交媒体上发布有关癌症的内容通常是 YACC 提供有关癌症患者的有效更新的策略。类别 2：积极在社交媒体上发布内容的照护者会获得各种不同的功能性社会支持，否则他们无法获得这些支持。类别 3：在网上发布癌症内容会带来负面后果的机会。类别 4：负面后果的可能性会影响一些照护者使用社交媒体的方式。
需要为 YACC 提供支持性服务，包括基于社交媒体的支持，以满足他们的需求，使他们能够在照顾职责和日常生活之间取得平衡。
