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照顾患有阿尔茨海默病的家庭成员与职业倦怠综合征:家庭主妇的健康受损。

Caring for Family Members With Alzheimer's and Burnout Syndrome: Impairment of the Health of Housewives.

作者信息

Avargues-Navarro María Luisa, Borda-Mas Mercedes, Campos-Puente Alina de Las Mercedes, Pérez-San-Gregorio María Ángeles, Martín-Rodríguez Agustín, Sánchez-Martín Milagrosa

机构信息

Department of Personality, Evaluation and Psychological Treatment, CTS-432 Research Team, University of Seville, Seville, Spain.

Research Directorate, Inca Garcilaso de la Vega University, Lima, Peru.

出版信息

Front Psychol. 2020 Apr 21;11:576. doi: 10.3389/fpsyg.2020.00576. eCollection 2020.

DOI:10.3389/fpsyg.2020.00576
PMID:32373005
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7186428/
Abstract

Being a housewife may already be a psychosocial risk factor leading to chronic stress and burnout, and this may be aggravated when the housewife must also become the caregiver of a family member with Alzheimer's. The burnout syndrome and how it can affect general health and the presence of emotional disorders were studied in housewives who were family caregivers of an Alzheimer's patient. The sample selected was made up of 193 housewives, 96 of whom were also caregivers for a family member with Alzheimer's. Sociodemographic measures used were the and Burnout was found in a significant percentage of participants. Emotional exhaustion, effect on general health, and presence of emotional disorders were higher in caregivers. Emotional exhaustion, general health, and anxiety were more influential, while depersonalization affected the appearance of depressive symptoms more. Being a caregiver and emotional exhaustion appeared to be the best predictors of emotional disorders. It was confirmed that emotional exhaustion influenced appearance of anxiety and depression equally in both groups. In the case of caregivers, an exhaustion-illness spiral was produced. In this group, emotional exhaustion seemed to become more severe as a consequence of the presence of chronic illnesses, and possibly influence the number of hours spent on care and having children living at home. Future research should analyze in greater depth and in a larger sample, the role of these variables and widen the focus of attention to personal variables that could be acting as protective factors and could be subject to intervention. The discussion concludes with some actions that should be included in prevention programs for the groups studied.

摘要

成为家庭主妇可能已经是导致慢性压力和倦怠的社会心理风险因素,而当家庭主妇还必须成为阿尔茨海默病患者的照料者时,这种情况可能会加剧。对作为阿尔茨海默病患者家庭照料者的家庭主妇的倦怠综合征及其如何影响总体健康和情绪障碍的存在进行了研究。所选样本由193名家庭主妇组成,其中96人也是阿尔茨海默病患者家庭成员的照料者。使用的社会人口学测量方法是[此处原文缺失具体内容]。在相当比例的参与者中发现了倦怠。照料者的情感耗竭、对总体健康的影响和情绪障碍的存在更为严重。情感耗竭、总体健康和焦虑的影响更大,而人格解体对抑郁症状的出现影响更大。成为照料者和情感耗竭似乎是情绪障碍的最佳预测因素。证实情感耗竭在两组中对焦虑和抑郁的出现影响相同。在照料者中,产生了一种倦怠-疾病螺旋。在这个群体中,由于慢性病的存在,情感耗竭似乎变得更加严重,并且可能影响照料时间和家中子女的数量。未来的研究应该更深入地分析这些变量的作用,并在更大的样本中进行研究,同时扩大关注范围,将可能作为保护因素且可能接受干预的个人变量纳入其中。讨论最后提出了一些应纳入针对所研究群体的预防方案中的行动。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/85e0/7186428/ce18289be5cd/fpsyg-11-00576-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/85e0/7186428/d8582f11e6fc/fpsyg-11-00576-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/85e0/7186428/b05cf8d94a08/fpsyg-11-00576-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/85e0/7186428/ce18289be5cd/fpsyg-11-00576-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/85e0/7186428/d8582f11e6fc/fpsyg-11-00576-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/85e0/7186428/b05cf8d94a08/fpsyg-11-00576-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/85e0/7186428/ce18289be5cd/fpsyg-11-00576-g003.jpg

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[Burden, empathy, and resilience in dependent people caregivers].[受抚养者照顾者的负担、同理心和复原力]
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Report by the Spanish Foundation of the Brain on the social impact of Alzheimer disease and other types of dementia.
西班牙脑基金会关于阿尔茨海默病和其他类型痴呆症的社会影响报告。
Neurologia (Engl Ed). 2021 Jan-Feb;36(1):39-49. doi: 10.1016/j.nrl.2017.10.005. Epub 2017 Dec 14.
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Front Psychol. 2017 Jan 20;8:18. doi: 10.3389/fpsyg.2017.00018. eCollection 2017.
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Factors influencing changes in health related quality of life of caregivers of persons with multiple chronic conditions.影响患有多种慢性病患者的照料者健康相关生活质量变化的因素。
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