Navarro-Abal Yolanda, López-López María José, Climent-Rodríguez José Antonio, Gómez-Salgado Juan
Departamento de Psicología Social, Evolutiva y de la Educación, Facultad de Ciencias de la Educación, Universidad de Huelva, Huelva, España.
Departamento de Psicología Clínica y Experimental, Facultad de Ciencias de la Educación, Universidad de Huelva, Huelva, España.
Gac Sanit. 2019 May-Jun;33(3):268-271. doi: 10.1016/j.gaceta.2017.11.009. Epub 2018 Feb 10.
To analyse the differences in perceived burden between family caregivers who are users of patient associations and those who are not; to assess the relationship between burden, resilience, and empathy levels.
Retrospective ex post facto study of two groups, one of them quasi control. The sample was composed of 155 informal caregivers (28 men and 155 women); 109 of them were users of patient relatives' associations and 46 were not. Both descriptive and bivariate comparative analyses were carried out.
Caregivers who were members of patient associations showed lower burden and empathy levels than those who were not. This highlighted that the higher their level of perceived burden, the lower their level of resilience.
Belonging to carers' associations results in a lower level of perceived burden and a lower risk of developing compassion fatigue syndrome.
分析患者协会成员家庭照料者与非患者协会成员家庭照料者在感知负担上的差异；评估负担、心理弹性和共情水平之间的关系。
对两组进行回顾性事后研究，其中一组为准对照组。样本由155名非正式照料者组成（28名男性和127名女性）；其中109名是患者亲属协会成员，46名不是。进行了描述性和双变量比较分析。
患者协会成员照料者的负担和共情水平低于非成员照料者。这突出表明，他们的感知负担水平越高，心理弹性水平越低。
加入照料者协会可降低感知负担水平，降低出现同情疲劳综合征的风险。
