Topal Firdevs, Camyar Hakan, Saritas Yuksel Elif, Gunay Suleyman, Topal Fatih, Gür Emine Özlem
Izmir Katip Celebi Univ Gastroenterology Department, Turkey.
Izmir Katip Celebi Univ Ataturk Research and Teaching Hospital Gastroenterology Department, Turkey.
Gastroenterol Res Pract. 2020 Jan 8;2020:6979720. doi: 10.1155/2020/6979720. eCollection 2020.
Beyond the medical treatment in inflammatory bowel disease (IBD), there are other issues which influence the quality of life adversely. The aim of this study was to determine the impact of the IBD patients' illness on working and education life.
The participants were invited to participate in the online survey from the Turkish Crohn's and Ulcerative Colitis Patient Association network. The data was analysed and then discussed to improve the health-related quality of working and education life.
One hundred and fifteen patients had ulcerative colitis (UC) (57.2%), and 86 had Crohn's disease (CD) (42.8%). There was a statistically significant difference in UC between retirement age group 1 (<40 age) and groups 2 (40-49 ages) and 4 (60-65 ages) ( < 0.05). There was the same significant difference in CD. Even though the data did not have significant statistical difference, there was clustering around negative perceptions the patients have about their working and education lives.
Our survey revealed a very strong causative relationship between work and IBD involving problems before, during, and at the end of employment. Young patients lower their career expectations, and that announces a clear need to support them and improve career guidance.
除了炎症性肠病（IBD）的药物治疗外，还有其他问题会对生活质量产生不利影响。本研究的目的是确定IBD患者的疾病对工作和教育生活的影响。
邀请参与者通过土耳其克罗恩病和溃疡性结肠炎患者协会网络参与在线调查。对数据进行分析，然后进行讨论，以改善与工作和教育生活相关的健康状况。
115例患者患有溃疡性结肠炎（UC）（57.2%），86例患有克罗恩病（CD）（42.8%）。在UC患者中，退休年龄组1（<40岁）与组2（40-49岁）和组4（60-65岁）之间存在统计学显著差异（<0.05）。CD患者中也存在同样的显著差异。尽管数据没有显著的统计学差异，但患者对其工作和教育生活的负面看法存在聚集现象。
我们的调查揭示了工作与IBD之间非常强烈的因果关系，涉及就业前、就业期间和就业结束时的问题。年轻患者降低了他们的职业期望，这表明显然需要支持他们并改善职业指导。
