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一个描绘儿童如何受到父母患癌影响的概念模型:一种建构主义扎根理论方法。

A Conceptual Model Depicting How Children Are Affected by Parental Cancer: A Constructivist Grounded Theory Approach.

作者信息

Alexander Elise S, Halkett Georgia K B, Lawrence Blake J, O'Connor Moira

机构信息

Discipline of Psychology, School of Population Health, Faculty of Health Sciences, Curtin University, Bentley, WA 6102, Australia.

Curtin School of Nursing/Curtin Health Innovation Research Institute (CHIRI), Faculty of Health Sciences, Curtin University, Bentley, WA 6102, Australia.

出版信息

Children (Basel). 2023 Sep 4;10(9):1507. doi: 10.3390/children10091507.

Abstract

Cancer patients' children are vulnerable to psychosocial and behavioural issues. The mechanisms underlying how children are affected by their parent's diagnosis are unknown, warranting further research. This study investigated how children are affected by their parent's cancer diagnosis and provides a theoretical model conceptualising this experience. Informed by methods of grounded theory, embedded within a social constructivist framework, 38 informants (15 health professionals (HPs); 11 parents; 12 children (5 to 17 years)) were interviewed using a semi-structured format. Three themes were identified: (i) children were worried and distressed because they felt alone, (ii) parents were unable to tend to children's needs because they were overwhelmed by practical factors, and (iii) HPs were not detecting children due to barriers that affected their visibility in clinical settings. The proposed Alexander's Children's Cancer Communication (ACCC) Model and clinical recommendations made can be used to guide the clinical practice and development of future intervention research.

摘要

癌症患者的子女容易出现心理社会和行为问题。子女如何受到其父母癌症诊断影响的潜在机制尚不清楚,需要进一步研究。本研究调查了子女如何受到其父母癌症诊断的影响,并提供了一个将这种经历概念化的理论模型。以扎根理论方法为依据,嵌入社会建构主义框架内,采用半结构化形式对38名 informant 进行了访谈(15名卫生专业人员(HP);11名父母;12名儿童(5至17岁))。确定了三个主题:(i)儿童因感到孤独而担忧和苦恼,(ii)父母因实际因素不堪重负而无法照顾子女的需求,以及(iii)由于影响其在临床环境中可见性的障碍,卫生专业人员未察觉儿童的情况。所提出的亚历山大儿童癌症沟通(ACCC)模型和临床建议可用于指导临床实践和未来干预研究的开展。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cb3b/10530185/bd5bac3cc6f1/children-10-01507-g001.jpg

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