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《梅尼埃病患者使用互联网和社交媒体的情况:对芬兰梅尼埃病联合会成员的探索性调查》。

The Use of the Internet and Social Media by Individuals with Ménière's Disease: An Exploratory Survey of Finnish Ménière Federation Members.

机构信息

Department of Speech and Hearing Sciences, Lamar University, Beaumont, Texas, USA.

Department of Otolaryngology, Hearing and Balance Research Unit, University of Tampere, Finland.

出版信息

J Int Adv Otol. 2020 Apr;16(1):13-17. doi: 10.5152/iao.2020.7563.

Abstract

OBJECTIVES

The present study explored the use of the Internet and social media by individuals with Ménière's disease (MD).

MATERIALS AND METHODS

This study utilized a retrospective design and included the data of 465 individuals with MD from the Finnish Ménière Federation (FMF) database. Moreover, the participants included 346 females (i.e., approximately 75% of the sample), with roughly 95% of which middle-aged or older adults. An Internet-based survey was used to collect the demographic information and determine the use of the Internet and social media by individuals with MD in order to establish a computer-based peer support program.

RESULTS

Based on the findings, more than 90% of the respondents reported using the Internet, 70% used the Internet to gather information about MD, and 47% stated that they trusted the information on the Internet.

CONCLUSION

The Internet and social media are frequently used by individuals with MD to gather information about their health conditions. Therefore, it is essential to ensure that appropriate and accurate information is available via Internet websites and social media platforms.

摘要

目的

本研究旨在探讨梅尼埃病(MD)患者对互联网和社交媒体的使用情况。

材料和方法

本研究采用回顾性设计,纳入了芬兰梅尼埃病联合会(FMF)数据库中的 465 名 MD 患者的数据。此外,参与者中包括 346 名女性(即约样本的 75%),其中约 95%为中老年人。通过互联网调查收集患者的人口统计学信息,以确定 MD 患者对互联网和社交媒体的使用情况,从而建立基于计算机的同伴支持计划。

结果

研究结果显示,超过 90%的受访者表示使用互联网,70%的受访者使用互联网获取 MD 相关信息,47%的受访者表示信任互联网上的信息。

结论

MD 患者经常使用互联网和社交媒体获取健康相关信息。因此,确保互联网网站和社交媒体平台提供合适、准确的信息至关重要。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/548d/7224418/234f34d5936d/jiao-16-1-13f1.jpg

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