Laboratoire de Psychopathologie et Processus de Santé (LPPS), Université de Paris, Institut de Psychologie, Boulogne-Billancourt, France.
Service d'Addictologie, Hôpital René-Muret (AP-HP), Hôpitaux Universitaires Paris Seine-Saint-Denis (HUPSSD), Sevran, France.
J Health Psychol. 2021 Jan;26(1):60-81. doi: 10.1177/1359105320916539. Epub 2020 May 20.
Improved treatments for cystic fibrosis allow more patients to become parents. This article presents a systematic review of literature on cystic fibrosis patients' experience of parenthood. Five databases (Cairn, Cochrane Library, PsycINFO, PubMed and ScienceDirect) produced 2335 documents that were screened. In total, 13 documents were retained and assessed with validated criteria. Five themes related to cystic fibrosis parenthood were discovered: population presentation, health and treatment adherence, adjustments, role of professionals and pressured temporality. Parenthood requires an important reorganisation of daily life in order to remain capable of childcare. Regardless of negative health impacts, cystic fibrosis parents have a positive outlook on parenthood.
囊性纤维化的治疗方法得到了改善，使得更多的患者能够成为父母。本文对囊性纤维化患者为人父母的体验进行了系统的文献回顾。五个数据库（Cairn、Cochrane Library、PsycINFO、PubMed 和 ScienceDirect）共产生了 2335 篇文献，经过筛选，共有 13 篇文献被保留下来，并使用经过验证的标准进行了评估。发现了与囊性纤维化父母身份相关的五个主题：人群介绍、健康和治疗依从性、调整、专业人员的角色和紧迫的时间性。为人父母需要对日常生活进行重大调整，以便能够照顾孩子。尽管健康受到负面影响，囊性纤维化的父母对为人父母仍持积极的态度。
