Williams Clare, Johnson Barbara, Middleton Peter G, Backer Vibeke, Gibson Peter G, Hollis Gill, Coleman Courtney
European Lung Foundation, Sheffield, UK.
CF Research Group, Ludwig Engel Centre for Respiratory Research, Westmead Institute for Medical Research, University of Sydney, Sydney, Australia.
ERJ Open Res. 2021 Dec 20;7(4). doi: 10.1183/23120541.00357-2021. eCollection 2021 Oct.
Lung diseases can complicate pregnancy, but little is known about the experiences of pregnancy among women living with such diseases. This survey aimed to understand the experiences of women with a lung condition before and during pregnancy, in childbirth and post-partum. The survey was translated into nine languages and hosted online between March and May 2018. This paper reports on 327 women who had asthma, cystic fibrosis (CF), lymphangioleiomyomatosis (LAM) and sarcoidosis as a sole or primary lung condition. Women with CF and LAM were most likely to report that their condition influenced their decision to have children. Those with CF and LAM who did become pregnant reported greater satisfaction with their healthcare during pregnancy and gave more consideration to factors such as location and type of birth; they were also more concerned about the impact of the pregnancy on their health than women with other diseases. Women with sarcoidosis reported receiving conflicting advice as to both the impact of their condition on pregnancy and how becoming pregnant might impact their health. Women with asthma reported not always being able to access the information they needed from healthcare professionals. The results suggest that healthcare providers should be having dialogues with affected women early on, from before conception, throughout the pregnancy and after giving birth, and training should be provided to healthcare staff to equip them with the information they need to do this.
肺部疾病会使妊娠复杂化，但对于患有此类疾病的女性在孕期的经历却知之甚少。这项调查旨在了解患有肺部疾病的女性在怀孕前、孕期、分娩时及产后的经历。该调查被翻译成九种语言，并于2018年3月至5月期间在网上开展。本文报告了327名患有哮喘、囊性纤维化（CF）、淋巴管平滑肌瘤病（LAM）和结节病且将其作为唯一或主要肺部疾病的女性情况。患有CF和LAM的女性最有可能报告称其病情影响了她们生育子女的决定。那些患有CF和LAM且确实怀孕的女性报告称对孕期医疗保健更为满意，并更多地考虑了诸如分娩地点和方式等因素；与患有其他疾病的女性相比，她们也更担心怀孕对自身健康的影响。患有结节病的女性报告称，对于其病情对妊娠的影响以及怀孕可能如何影响其健康，她们收到了相互矛盾的建议。患有哮喘的女性报告称并非总能从医护人员那里获得所需信息。结果表明，医疗服务提供者应在受孕前、整个孕期及产后尽早与受影响的女性进行沟通，并且应为医护人员提供培训，使其具备开展此项工作所需的信息。
