Pruski Michal, Gamble Nathan K
Manchester University NHS Foundation Trust, Manchester, United Kingdom.
Manchester Metropolitan University, Manchester, United Kingdom.
Linacre Q. 2019 May;86(2-3):198-206. doi: 10.1177/0024363919849258. Epub 2019 Jun 24.
The English cases of Charlie Gard and Alfie Evans involved a conflict between the desires of their parents to preserve their children's lives and judgments of their medical teams in pursuit of clinically appropriate therapy. The treatment the children required was clearly extraordinary, including a wide array of advanced life-sustaining technological support. The cases exemplify a clash of worldviews rooted in different philosophies of life and medical care. The article highlights the differing perspectives on parental authority in medical care in England, Canada, and the United States. Furthermore, it proposes a solution that accommodates for both reasonable parental desires and professional medical opinion. This is achieved by looking at concepts of extraordinary therapy, best interest, reasonable parenthood and medical objections. In cases where a child's treatment involves extraordinary therapy, there is often a conflict of opinion between the medical team and the parents with regard to the best course of action. The assumption should be that responsible, caring parents make reasonable and acceptable decisions for the good of their children. Rather than focusing on making a hypothetical best interest judgment, courts should in the first instance side with the parents. Only when parents act unreasonably or malevolently should their wishes be overridden. This should not affect the medics' right to conscientiously object towards carrying out procedures that they deem to be medically unnecessary or harmful.
查理·加德和阿尔菲·埃文斯的英国案例涉及到他们父母希望挽救孩子生命的愿望与医疗团队为寻求临床适当治疗而做出的判断之间的冲突。孩子们所需的治疗显然是非同寻常的,包括一系列广泛的先进生命维持技术支持。这些案例体现了源于不同生活哲学和医疗护理理念的世界观冲突。本文突出了英国、加拿大和美国在医疗护理中对父母权威的不同观点。此外,文章提出了一个兼顾父母合理愿望和专业医学意见的解决方案。这是通过审视非同寻常治疗、最佳利益、合理父母身份和医疗反对意见等概念来实现的。在儿童治疗涉及非同寻常治疗的情况下,医疗团队和父母之间在最佳行动方案上往往存在意见冲突。应该假定,负责任、有爱心的父母会为了孩子的利益做出合理且可接受的决定。法院不应首先专注于做出假设性的最佳利益判断,而应站在父母一边。只有当父母行为不合理或恶意行事时,他们的愿望才应被推翻。这不应影响医务人员出于良心拒绝执行他们认为在医学上不必要或有害的程序的权利。