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In Defense of Best Interests: When Parents and Clinicians Disagree.捍卫最大利益:当父母与临床医生意见相左时。
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7
When Parents Refuse: Resolving Entrenched Disagreements Between Parents and Clinicians in Situations of Uncertainty and Complexity.当父母拒绝时:在不确定和复杂的情况下解决父母和临床医生之间根深蒂固的分歧。
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8
Blood Transfusion in Children: The Refusal of Jehovah's Witness Parents'.儿童输血:耶和华见证会父母的拒绝
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9
Transitional paternalism: how shared normative powers give rise to the asymmetry of adolescent consent and refusal.过渡性家长主义:共享规范权力如何导致青少年同意与拒绝的不对称
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10
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是否应该要求父母对挽救儿童生命的干预措施表示同意?

Should parents be asked to consent for life-saving paediatric interventions?

作者信息

Gamble Nathan K, Pruski Michal

机构信息

Faculty of Medicine and Dentistry, University of Alberta, Alberta, Canada.

London School of Tropical Medicine and Hygiene, University of London, London, UK.

出版信息

J Intensive Care Soc. 2021 Nov;22(4):335-341. doi: 10.1177/1751143720969267. Epub 2020 Oct 29.

DOI:10.1177/1751143720969267
PMID:35154372
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8829770/
Abstract

Informed consent, when given by proxy, has limitations: chiefly, it must be made in the interest of the patient. Here we critique the standard approach to parental consent, as present in Canada and the UK. Parents are often asked for consent, but are not given the authority to refuse medically beneficial treatment in many situations. This prompts the question of whether it is possible for someone to consent if they cannot refuse. We present two alternative and philosophically more consistent frameworks for paediatric proxy consent. The first allows meaningful consent (parents may say 'yes' or 'no' to treatment), provided that parents are medically informed/competent and intend the health and well-being of their child. In the second solution, medical practitioners or the state consent for treatment, with parents only being consulted to help give insight to the child's circumstances. While we contend that either of these two options is superior to the insincerity of the present paradigm, we suggest that the first solution is preferable.

摘要

通过代理人给出的知情同意存在局限性

主要是,它必须是为了患者的利益而做出。在此,我们批判加拿大和英国现行的父母同意的标准做法。父母经常被要求给予同意,但在许多情况下却没有拒绝医学上有益治疗的权力。这就引发了一个问题:如果某人不能拒绝,他们是否有可能给予同意。我们提出了两种替代性的、在哲学上更一致的儿科代理同意框架。第一种允许有意义的同意(父母可以对治疗说“是”或“否”),前提是父母具备医学知识/有行为能力且意图孩子的健康和幸福。在第二种解决方案中,由医生或国家同意治疗,仅咨询父母以帮助了解孩子的情况。虽然我们认为这两种选择中的任何一种都优于当前模式的不真诚,但我们建议第一种解决方案更可取。