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停止治疗的癫痫患者。

Patients with epilepsy who discontinue treatment.

作者信息

Thorbecke R

机构信息

Abteilung für Neurologie, Universitätsklinikum Rudolf-Virchow, Standort Charlottenburg, Freie Universität Berlin, Germany.

出版信息

Epilepsy Res Suppl. 1988;1:119-24.

PMID:3243262
Abstract

Out of 247 patients coming to an outpatient clinic (OPC) for patients with epilepsy during a time span of 18 months, 214 could be definitely rated with respect to continuation or discontinuation of treatment. 96 discontinued treatment, i.e., they did not keep their last appointment and also did not come to the OPC during the following 6 months or longer. The rate of discontinuation was especially high for patients who had had only one seizure, for patients with chronic alcoholism or alcoholic withdrawal seizures and for patients who had already had several seizures but objected to pharmacological treatment. One hundred and forty-nine patients had had at least 2 seizures and were on medication. In this group we looked for variables discriminating between continuation and discontinuation. Medical data were taken from the records and all patients received a questionnaire with 36 items. Medical variables such as type and duration of epilepsy had no influence on keeping appointments. There were, however, significant relations between continuation or discontinuation and perceived quality of care in the OPC, obligation of the patient to look after children, perceived discrimination of persons with epilepsy at the work place and the patient's feeling of being treated like a little child when the doctor utters his suspicions about non-compliance.

摘要

在18个月的时间跨度内,247名前往癫痫门诊(OPC)就诊的患者中,214名患者的治疗持续或中断情况能够得到明确评估。96名患者中断了治疗,即他们没有赴最后一次约诊,且在接下来的6个月或更长时间内未再前往门诊。对于仅有一次癫痫发作的患者、患有慢性酒精中毒或酒精戒断性癫痫发作的患者以及已经发作过几次但拒绝药物治疗的患者,中断治疗的比例尤其高。149名患者至少发作过2次且正在接受药物治疗。在这组患者中,我们寻找能够区分治疗持续和中断的变量。医疗数据取自病历,所有患者都收到了一份包含36个项目的问卷。癫痫类型和病程等医疗变量对如约就诊没有影响。然而,治疗持续或中断与门诊所感知的护理质量、患者照顾孩子的义务、在工作场所所感知到的对癫痫患者的歧视以及当医生怀疑患者不依从治疗时患者感觉自己被当作小孩对待之间存在显著关联。

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