Medical Humanities & Health Studies, Indiana University-Purdue University Indianapolis, Indianapolis, IN, USA.
National Museum of American History, Smithsonian Institution, MRC 613, PO Box 37012, Washington, DC, 20013-7012, USA.
J Med Humanit. 2022 Mar;43(1):179-195. doi: 10.1007/s10912-020-09617-7.
The authors conducted a qualitative analysis of thirty-seven issues of The DDU Review, a newsletter produced by residents of the Dual Diagnosis Unit, a residential unit for people who had diagnoses of developmental disability and serious mental illness in the Central State Hospital (Indiana, USA). The analysis of the newsletters produced between September 1988 and June 1992 revealed three major themes: 1) the mundane; 2) good behavior; and 3) advocacy. Contrary to the authors' expectations, the discourse of medicalization-such as relations with physicians, diagnoses, and medications-receive little attention. Instead, the patient-journalists focus on prosaic aspects of institutional life. The patients used their writing as a form self-definition and advocacy. The authors argue that even though it is tempting to consider the patients' emphasis on good behavior as evidence of institutional control, internalized discipline, and medicalization, a more nuanced interpretation, which focuses on how the patients' understood their own experiences, is warranted. Researchers must also recognize the ways in which The DDU Review reveals the patient-journalists' experience of an institutional life that includes non-medical staff (attendants, secretaries, and therapists), varied social relationships among patients, and negotiated freedoms.
作者对《DDU 评论》(The DDU Review)的 37 期内容进行了定性分析,该通讯由美国中央州立医院(印第安纳州)的双重诊断病房(Dual Diagnosis Unit,为同时患有发育障碍和严重精神疾病的患者提供的住宿单元)的居民编写。对 1988 年 9 月至 1992 年 6 月期间出版的通讯的分析揭示了三个主要主题:1)世俗;2)良好行为;3)倡导。与作者的预期相反,很少关注医学化的论述,如与医生、诊断和药物的关系。相反,患者记者关注机构生活的平凡方面。患者将自己的写作作为自我定义和倡导的一种形式。作者认为,尽管将患者对良好行为的强调视为机构控制、内化纪律和医学化的证据很诱人,但更细致的解释,即关注患者如何理解自己的经历,是有必要的。研究人员还必须认识到《DDU 评论》如何揭示患者记者在机构生活中的体验,包括非医疗人员(护理人员、秘书和治疗师)、患者之间不同的社会关系以及协商自由。