Palisano Robert J, Di Rezze Briano, Stewart Debra, Rosenbaum Peter L, Hlyva Oksana, Freeman Matthew, Nguyen Tram, Gorter Jan Willem
Department of Physical Therapy and Rehabilitation Sciences, Drexel University, Philadelphia, PA, USA.
CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.
Dev Med Child Neurol. 2017 May;59(5):470-476. doi: 10.1111/dmcn.13402. Epub 2017 Feb 23.
The life course health development (LCHD) model by Halfon et al. conceptualizes health development occurring through person-environment transactions that enable well-being and participation in desired social roles throughout life, areas that have not received adequate attention in healthcare. The aim of this 'perspectives' paper is to apply the six core tenets of the LCHD model and the concept of health development trajectories to individuals with lifelong neurodevelopmental conditions. We share the perspective that modifiable aspects of the environment often restrict health development; we then advocate that children, beginning at a young age, should engage in 'real-world' experiences that prepare them for current and future social roles. LCHD encourages future planning from the outset, continuity of care between pediatric and adult systems, and coordination of services and supports. We believe LCHD can be transformative in enabling healthy living of individuals with neurodevelopmental conditions.
哈尔丰等人提出的生命历程健康发展（LCHD）模型将健康发展概念化为通过人与环境的相互作用而发生的过程，这种相互作用能促进一生的幸福以及参与期望的社会角色，而这些领域在医疗保健中并未得到充分关注。这篇“观点”文章的目的是将LCHD模型的六个核心原则以及健康发展轨迹的概念应用于患有终身神经发育障碍的个体。我们认同这样的观点，即环境中可改变的方面常常会限制健康发展；接着我们主张，儿童从幼年起就应参与“现实世界”的体验，为其当前和未来的社会角色做好准备。LCHD鼓励从一开始就进行未来规划，促进儿科和成人医疗系统之间的连续护理，以及服务与支持的协调。我们相信，LCHD在促进神经发育障碍个体的健康生活方面具有变革性作用。
