从患者角度看头颈癌幸存者的情况
Head and neck cancer survivorship from the patient perspective.
作者信息
Pagedar Nitin A, Kendell Nicholas, Christensen Alan J, Thomsen Timothy A, Gist Michaela, Seaman Aaron T
机构信息
Department of Otolaryngology-Head and Neck Surgery, University of Iowa, Iowa City, Iowa, USA.
Department of Psychology and Brain Sciences, University of Iowa, Iowa City, Iowa, USA.
出版信息
Head Neck. 2020 Sep;42(9):2431-2439. doi: 10.1002/hed.26265. Epub 2020 May 23.
BACKGROUND
Survivorship is a critical part of head and neck cancer (HNC) care. In order to design better processes, we assessed care provided to long-term HNC survivors and their priorities for ongoing care.
METHODS
A survey was provided to HNC survivors at clinic appointments, including our HNC survivorship clinic. Questions focused on priorities for care in the otolaryngology clinic, types of care provided, and opioid use.
RESULTS
Of 168 respondents, the most common priority for survivors was surveillance for recurrence (first priority in 75%), with general health the next most common (8%). Few respondents reported active primary care involvement in survivorship. About 10% of patients reported current opioid use.
CONCLUSION
Survivors face a large burden of symptoms and deficits, but our data show that most survivors focus on recurrence. Few survivors reported recall of survivorship care plan delivery or discussing cancer care needs with primary care providers.
背景
生存是头颈癌（HNC）护理的关键部分。为了设计更好的流程，我们评估了为长期HNC幸存者提供的护理及其持续护理的优先事项。
方法
在门诊预约时，向HNC幸存者提供了一份调查问卷，包括我们的HNC生存诊所。问题集中在耳鼻喉科诊所护理的优先事项、提供的护理类型以及阿片类药物的使用。
结果
在168名受访者中，幸存者最常见的优先事项是复发监测（75%为首要优先事项），其次是总体健康（8%）。很少有受访者报告初级保健积极参与生存护理。约10%的患者报告目前使用阿片类药物。
结论
幸存者面临着巨大的症状和缺陷负担，但我们的数据表明，大多数幸存者关注复发。很少有幸存者报告记得接受过生存护理计划或与初级保健提供者讨论过癌症护理需求。
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