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基于互联网的多发性硬化症患者实时远程会诊的可行性:干预性初步研究。

Feasibility of Real Time Internet-Based Teleconsultation in Patients With Multiple Sclerosis: Interventional Pilot Study.

作者信息

D'Haeseleer Miguel, Eelen Piet, Sadeghi Nima, D'Hooghe Marie B, Van Schependom Jeroen, Nagels Guy

机构信息

Universitair Ziekenhuis Brussel, Brussels, Belgium.

Nationaal Multiple Sclerose Centrum, Melsbroek, Belgium.

出版信息

J Med Internet Res. 2020 Aug 13;22(8):e18178. doi: 10.2196/18178.

Abstract

BACKGROUND

Telemedicine (TM) is currently flourishing in rural and emergency settings, but its implementation in the routine management of chronic neurological disorders has developed with more hesitation. Limited access to specialized care facilities and expanding patient populations, combined with unprecedented mobility restrictions imposed by the coronavirus disease pandemic, are currently stressing the need for remote solutions in this field. Studies in patients with multiple sclerosis (MS) have been heterogeneous in objectives and methodology but generally support the concept that TM interventions produce clinical benefits, cost-effectiveness, and user satisfaction. Nonetheless, data on live interaction between patients and health care providers for MS teleconsultation purposes remain scarce.

OBJECTIVE

The aim of this study is to demonstrate the feasibility of planned real time audiovisual teleconsultation over the internet for patients with MS.

METHODS

A total of 20 patients with MS presenting at a specialized MS center in Belgium were recruited for this study. One teleconsultation was scheduled for each participant. Patients were provided a unique hyperlink by mail in advance, leading them automatically and directly to the virtual waiting room, where they could accept or decline our incoming call. All teleconsultations were performed by a trained medical student with the intention to keep the conversation similar to what is usually discussed during a classic face-to-face MS consultation; no remote physical exams were performed. The approach was considered feasible if at least 80% of the planned TM visits could be successfully completed at the foreseen moment. Patient satisfaction (technical quality, convenience, and overall quality of care) was evaluated at the end of each teleconsultation by means of 5-point Likert scales containing the categories very unsatisfied, unsatisfied, neutral, satisfied, and highly satisfied.

RESULTS

Out of 20 consultations, 17 were successfully completed (85%). Failures were due to patients not responding (n=2) and technical issues (n=1). Out of the 17 consultations, 17 patients declared themselves satisfied or highly satisfied for technical quality, 15 patients for convenience, and 16 patients for overall quality of care.

CONCLUSIONS

Planned real time audiovisual teleconsultation over the internet is feasible and highly appreciated in patients with MS. Incorporation of such services in routine clinical MS practice is expected to improve access to specialized care facilities for affected patients.

摘要

背景

远程医疗(TM)目前在农村和急救环境中蓬勃发展,但在慢性神经疾病的常规管理中的应用发展较为迟缓。获得专科护理设施的机会有限以及患者数量不断增加,再加上冠状病毒病大流行带来的前所未有的行动限制,目前凸显了该领域对远程解决方案的需求。针对多发性硬化症(MS)患者的研究在目标和方法上存在差异,但总体上支持远程医疗干预具有临床益处、成本效益和用户满意度这一概念。尽管如此,关于患者与医疗保健提供者为进行MS远程会诊而进行实时互动的数据仍然很少。

目的

本研究的目的是证明通过互联网为MS患者进行计划中的实时视听远程会诊的可行性。

方法

本研究招募了20名在比利时一家专科MS中心就诊的MS患者。为每位参与者安排了一次远程会诊。通过邮件提前向患者提供一个唯一的超链接,该链接会自动直接将他们引导至虚拟候诊室,在那里他们可以接受或拒绝我们的来电。所有远程会诊均由一名经过培训的医学生进行,目的是使对话与经典面对面MS会诊期间通常讨论的内容相似;未进行远程体格检查。如果至少80%的计划中的TM会诊能够在预期时间成功完成,则该方法被认为是可行的。在每次远程会诊结束时,通过包含非常不满意、不满意、中性、满意和高度满意等类别的5点李克特量表对患者满意度(技术质量、便利性和总体护理质量)进行评估。

结果

在20次会诊中,17次成功完成(85%)。失败原因是患者未回应(n = 2)和技术问题(n = 1)。在17次会诊中,17名患者对技术质量表示满意或高度满意,15名患者对便利性表示满意,16名患者对总体护理质量表示满意。

结论

通过互联网进行计划中的实时视听远程会诊对MS患者是可行的且广受好评。预计将此类服务纳入MS常规临床实践中,将改善受影响患者获得专科护理设施的机会。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/69ca/7453329/1635b399a0ef/jmir_v22i8e18178_fig1.jpg

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