Menzies Jessica, Hughes Jennifer
Department of Nutrition and Dietetics, Sydney Children's Hospital, Sydney, New South Wales, Australia.
J Paediatr Child Health. 2020 Nov;56(11):1791-1794. doi: 10.1111/jpc.14840. Epub 2020 May 28.
Feeding problems have been described in young children with oesophageal atresia (OA). The primary aim of this study was to determine the specific concerns of parents and carers of infants and young children with OA regarding introducing solids and moving up to family foods.
A questionnaire was developed for parents and carers of infants and children with OA, aged 12 months to 6 years. Questionnaires were completed by 20 parents attending a multidisciplinary OA clinic between June 2016 and June 2017. Demographics and parental concern regarding feeding milestones were collected. The Montreal Children's Hospital Feeding Scale was completed.
The majority of children (95%) had type C OA. Eleven (55%) parents agreed/strongly agreed that they were concerned about their child's feeding prior to the introduction of solids and about moving to more textured solids. The most common concern was choking and food impaction for both time points. Twelve (60%) parents agreed/strongly agreed that the majority of mealtimes in their child's first 1-2 years of life were stressful. Thirteen (65%) parents reported avoiding particular foods due to their child's OA. The majority of children (n = 17) had no feeding difficulty according to an objective scale, and the rest had minor difficulty.
Parental concern around feeding still exists in infants and children without a severe feeding difficulty. Multidisciplinary involvement, including a dietitian and speech pathologist, from an early age is important for infants and children with OA.
食管闭锁(OA)患儿存在喂养问题。本研究的主要目的是确定OA婴幼儿的父母和照料者在引入固体食物及过渡到家庭食物方面的具体担忧。
为12个月至6岁OA患儿的父母和照料者编制了一份问卷。2016年6月至2017年6月期间,在一个多学科OA诊所就诊的20位父母完成了问卷。收集了人口统计学信息以及父母对喂养里程碑的担忧。完成了蒙特利尔儿童医院喂养量表。
大多数患儿(95%)为C型OA。11位(55%)父母同意/强烈同意他们在引入固体食物之前以及过渡到质地更丰富的固体食物时,会担心孩子的喂养问题。两个时间点最常见的担忧都是噎食和食物嵌塞。12位(60%)父母同意/强烈同意他们孩子生命最初1至2年中的大多数进餐时间都很紧张。13位(65%)父母报告称,由于孩子患有OA,他们会避免某些特定食物。根据客观量表,大多数患儿(n = 17)没有喂养困难,其余患儿有轻微困难。
在没有严重喂养困难的婴幼儿中,父母仍然存在对喂养的担忧。对于OA婴幼儿,从早期就进行多学科干预,包括营养师和言语病理学家的参与很重要。