抽动秽语综合征患者家属的支持性沟通体验。

Experiences of Tourette Syndrome Caregivers With Supportive Communication.

作者信息

Travis Eryn, Juarez-Paz Anna Victoria Ortiz

机构信息

West Chester University, West Chester, Pennsylvania, USA.

Indiana University of Pennsylvania, Indiana, Pennsylvania, USA.

出版信息

Qual Health Res. 2020 Aug;30(10):1480-1490. doi: 10.1177/1049732320915444. Epub 2020 Jun 1.

Abstract

The experiences of Tourette syndrome (TS) caregivers with supportive communication are examined in this qualitative investigation. TS is a childhood-onset neurodevelopmental disorder marked by a combination of involuntary verbal and motor tics lasting for more than 1 year. Although individuals are impacted the most by TS, the stress for caring for a child with TS takes an emotional and physical toll on the caregiver. Eleven participants shared their experiences with receiving supportive communication by taking part in semi-structured interviews. Data analysis yielded three themes: (a) TS caregivers describe their experiences as a struggle; (b) they seek out specific social support from friends and families; and (c) they frequently receive social support that increases instead of reducing stress.

摘要

这项定性研究考察了图雷特综合征(TS)照料者在接受支持性沟通方面的经历。TS是一种儿童期起病的神经发育障碍,其特征是不自主的言语和运动抽动相结合,持续超过1年。虽然TS对个体影响最大,但照顾患有TS的孩子所带来的压力会给照料者造成身心伤害。11名参与者通过参与半结构化访谈分享了他们接受支持性沟通的经历。数据分析得出了三个主题:(a)TS照料者将他们的经历描述为一场挣扎;(b)他们向朋友和家人寻求特定的社会支持;(c)他们经常得到的社会支持反而增加而非减轻了压力。

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