Travis Eryn, Juarez-Paz Anna Victoria Ortiz
West Chester University, West Chester, Pennsylvania, USA.
Indiana University of Pennsylvania, Indiana, Pennsylvania, USA.
Qual Health Res. 2020 Aug;30(10):1480-1490. doi: 10.1177/1049732320915444. Epub 2020 Jun 1.
The experiences of Tourette syndrome (TS) caregivers with supportive communication are examined in this qualitative investigation. TS is a childhood-onset neurodevelopmental disorder marked by a combination of involuntary verbal and motor tics lasting for more than 1 year. Although individuals are impacted the most by TS, the stress for caring for a child with TS takes an emotional and physical toll on the caregiver. Eleven participants shared their experiences with receiving supportive communication by taking part in semi-structured interviews. Data analysis yielded three themes: (a) TS caregivers describe their experiences as a struggle; (b) they seek out specific social support from friends and families; and (c) they frequently receive social support that increases instead of reducing stress.
这项定性研究考察了图雷特综合征（TS）照料者在接受支持性沟通方面的经历。TS是一种儿童期起病的神经发育障碍，其特征是不自主的言语和运动抽动相结合，持续超过1年。虽然TS对个体影响最大，但照顾患有TS的孩子所带来的压力会给照料者造成身心伤害。11名参与者通过参与半结构化访谈分享了他们接受支持性沟通的经历。数据分析得出了三个主题：（a）TS照料者将他们的经历描述为一场挣扎；（b）他们向朋友和家人寻求特定的社会支持；（c）他们经常得到的社会支持反而增加而非减轻了压力。
