对抽动秽语综合征儿童及青少年经历的质性探索
A Qualitative Exploration of the Experiences of Children and Adolescents with Tourette Syndrome.
作者信息
Edwards Kim R, Mendlowitz Sandra, Jackson Elana, Champigny Claire, Specht Matt, Arnold Paul, Gorman Daniel, Dimitropoulos Gina
机构信息
McMaster Children's Hospital, Hamilton, Ontario, Canada.
The Hospital for Sick Children, Toronto, Ontario, Canada.
出版信息
J Can Acad Child Adolesc Psychiatry. 2017 Winter;26(1):39-44. Epub 2017 Mar 1.
OBJECTIVE
The purpose of this qualitative study was to explore the experiences of youth with Tourette Syndrome (TS).
METHOD
Thirteen participants with TS were recruited from a large tertiary care hospital to complete semi-structured interviews and two questionnaires pertaining to demographic information and tic severity. Thematic analysis was utilized to systematically analyze the data.
RESULTS
Three main themes were identified: 1) beliefs about TS; 2) TS related distress and impairment; and, 3) coping with TS.
CONCLUSION
The findings from this study suggest that most participants were aware of their tics but unaware of the cause of tics/TS. The interviews also highlighted that, for most participants, TS caused emotional, social, physical, and/or occupational impairment. Despite their distress, participants provided several suggestions for coping with TS and for supporting those who are diagnosed with this condition.
目的
本定性研究旨在探索患有抽动秽语综合征（TS）的青少年的经历。
方法
从一家大型三级护理医院招募了13名患有TS的参与者，以完成半结构化访谈以及两份有关人口统计学信息和抽动严重程度的问卷。采用主题分析法对数据进行系统分析。
结果
确定了三个主要主题：1）对TS的看法；2）与TS相关的困扰和损害；3）应对TS。
结论
本研究结果表明，大多数参与者意识到自己的抽动，但不知道抽动/TS的原因。访谈还强调，对大多数参与者而言，TS会导致情绪、社交、身体和/或职业方面的损害。尽管感到困扰，但参与者提供了一些应对TS以及支持被诊断患有此病者的建议。
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