The Walton Centre NHS Foundation Trust, Liverpool, UK.
Institute of Population Health Sciences, University of Liverpool, Liverpool, UK.
Health Soc Care Community. 2020 Nov;28(6):2282-2289. doi: 10.1111/hsc.13049. Epub 2020 Jun 1.
People living with Motor Neurone Disease (plwMND) have emphasised the importance of psychological support and well-being in helping them manage their condition. Social prescribing is a formal process of referring patients with largely socioeconomic and psychosocial issues to a link worker to co-design a plan to improve their health and well-being. Intervention involves supporting engagement in meaningful activities based within the individual's local community. This pilot project aimed to explore the application of social prescribing with plwMND.
A cohort of plwMND were supported by an occupational therapist and link worker to identify and access community-based activities. Qualitative interviews were completed post-intervention with the plwMND and the link workers. Findings were analysed using thematic analysis.
A total of nine plwMND took part in this pilot service, and five plwMND and four link workers were interviewed. PlwMND valued participation and wanted to engage in community-based activities. Those with mild symptomatology were able to access activities and reported a positive impact on their well-being. Those with more complex needs, particularly reduced mobility, experienced significant barriers to participation. Barriers included transport, equipment provision, lack of company to support participation and lack of confidence using mobility aids in a community environment. Link workers valued joint working with an occupational therapist.
Social prescribing aims to address the health inequalities of those living with long-term conditions, although currently it likely excludes plwMND. Future work needs to quantitatively evaluate the effects of the service on the well-being of plwMND.
肌萎缩侧索硬化症（MND）患者强调心理支持和幸福感在帮助他们管理病情方面的重要性。社会处方是将主要存在社会经济和心理社会问题的患者转介给联系工作者以共同设计改善健康和幸福感计划的正式流程。干预措施包括支持患者参与基于其当地社区的有意义的活动。本试点项目旨在探索社会处方在 MND 患者中的应用。
一组 MND 患者由职业治疗师和联系工作者支持，以确定和获得基于社区的活动。在干预后对 MND 患者和联系工作者进行了定性访谈。使用主题分析对结果进行了分析。
共有 9 名 MND 患者参加了这项试点服务，对 5 名 MND 患者和 4 名联系工作者进行了访谈。MND 患者重视参与并希望参与社区活动。那些症状较轻的患者能够参加活动，并报告对他们的幸福感有积极影响。那些有更复杂需求的患者，特别是活动能力下降的患者，在参与方面面临着重大障碍。障碍包括交通、设备提供、缺乏陪伴以支持参与以及在社区环境中使用移动辅助设备缺乏信心。联系工作者重视与职业治疗师共同工作。
社会处方旨在解决患有长期疾病的人的健康不平等问题，但目前它可能排除了 MND 患者。未来的工作需要定量评估该服务对 MND 患者幸福感的影响。
