The Research Initiative for Activity Studies and Occupational Therapy, Research Unit of General Practice, Institute of Public Health, University of Southern Denmark, Odense, Denmark.
Department of Rheumatology, The ADL Unit, The Parker Institute, Copenhagen University Hospitals Bispebjerg - Frederiksberg, Frederiksberg, Denmark.
Eur J Cancer Care (Engl). 2020 Sep;29(5):e13258. doi: 10.1111/ecc.13258. Epub 2020 Jun 2.
This study aimed at exploring everyday activities of people with advanced cancer living at home: which everyday activities they perform; perceived and observed quality of performance of self-care and household activities; which activities they would like to be able to perform; and determine any gender differences.
Outpatients (n = 164) with advanced cancer were recruited from Danish oncology units. Data were based on medical hospital records, standardised questionnaires, a 1-day diary, standardised interviews and standardised observations. All data were subject to descriptive and statistical analyses.
More than 95% of the study sample was classified in ECOG performance status 1 and 2. Compared to population-based norms, the participants reported lower levels of global health and quality of life, as well as lower physical and role functioning. Across gender, participants spent the majority of the day involved in self-care and leisure activities. They reported to perform self-care independently without risk, although 60% reported problems with mobility. While heavy household activities were reported as most problematic, participants prioritised support to engage in more active leisure and social activities.
People with advanced cancer experience problems related to performance of and engagement in everyday activities indicating a need for palliative rehabilitation services.
本研究旨在探讨居家晚期癌症患者的日常活动：他们进行哪些日常活动；自我护理和家务活动的感知和观察到的完成质量；他们希望能够完成哪些活动；并确定是否存在性别差异。
从丹麦肿瘤病房招募了 164 名患有晚期癌症的门诊患者。数据基于医疗病历、标准化问卷、为期 1 天的日记、标准化访谈和标准化观察。所有数据均进行了描述性和统计分析。
研究样本中超过 95%的患者 ECOG 表现状态为 1 级和 2 级。与基于人群的标准相比，参与者报告的总体健康和生活质量较低，以及身体和角色功能较低。在性别方面，参与者大部分时间都在从事自我护理和休闲活动。他们报告说能够独立、无风险地完成自我护理，但 60%的人报告存在移动问题。虽然重家务活动被认为是最成问题的，但参与者优先支持从事更积极的休闲和社交活动。
晚期癌症患者在进行日常活动和参与日常活动方面存在问题，这表明需要姑息康复服务。
