Programa de Pós-Graduação em Ciências da Saúde: Cardiologia. Instituto de Cardiologia do Rio Grande do Sul - Fundação Universitária de Cardiologia, Porto Alegre, RS - Brasil.
Departamento de Saúde Coletiva - Universidade Federal de Ciências da Saúde de Porto Alegre, Porto Alegre, RS - Brasil.
Arq Bras Cardiol. 2020 Jun 1;114(5):786-792. doi: 10.36660/abc.20180417.
Knowledge about the disease itself can be important for self-care in patients with several problems and comprehends information about the diagnosis up to the most important clinical implications.
To identify the level of knowledge of children and adolescents with congenital heart disease (CHD) about their illness, and to analyze the association between the level of knowledge and the practice of physical activity.
Cross-sectional study with 335 patients with CHD, aged 8 to 13 years, followed at a referral pediatric cardiology service in Southern Brazil. Patients were interviewed regarding their knowledge about CHD and a review of medical records was performed to obtain details on heart disease and procedures. A significance level p<0.05 was used.
More than 50% of the children and adolescents did not know how to say the name of their disease or explain it. After adjusted OR (AOR), cyanotic patients in comparison to acyanotic ones (AOR: 2.29; 95%CI: 1.76-6.71; p = 0.019); children with lower level of schooling (AOR: 2.20; 95%CI: 1.81-5.86; p = 0.025); and those who did not practice physical activity (AOR: 1.88; 95%CI: 1.09-3.45; p = 0.011) showed potential for incorrect answers or did not know their disease.
Cyanotic children and adolescents, with a lower level of schooling and who did not practice physical activity, had little knowledge about their disease. It is necessary to develop educational intervention strategies to increase knowledge and change behavior in physical activity promotion, according to the CHD complexity. (Arq Bras Cardiol. 2020; 114(5):786-792).
对于存在多种问题的患者，了解疾病本身的知识可能对其自我护理非常重要，这包括从诊断到最重要的临床意义的相关信息。
确定患有先天性心脏病（CHD）的儿童和青少年对其疾病的了解程度，并分析知识水平与体育活动实践之间的关联。
横断面研究，纳入巴西南部一家儿科心脏病学转诊服务处的 335 名年龄 8 至 13 岁的 CHD 患者。对患者进行了有关 CHD 知识的访谈，并对病历进行了回顾，以获取心脏病和治疗方法的详细信息。采用单侧检验，p 值<0.05 为差异有统计学意义。
超过 50%的儿童和青少年不知道如何说出他们疾病的名称或解释其含义。调整后的优势比（OR）表明，与非发绀患者相比，发绀患者（OR：2.29；95%CI：1.76-6.71；p = 0.019）；受教育程度较低的儿童（OR：2.20；95%CI：1.81-5.86；p = 0.025）；以及不进行体育活动的儿童（OR：1.88；95%CI：1.09-3.45；p = 0.011）回答错误或不了解其疾病的可能性更大。
发绀、受教育程度较低且不进行体育活动的青少年对其疾病的了解甚少。有必要根据 CHD 的复杂性制定教育干预策略，以提高知识水平并改变体育活动促进行为。（Arq Bras Cardiol. 2020; 114(5):786-792）。
