Wu Verena Shuwen, Smith Allan Ben, Girgis Afaf
Psycho-Oncology Research Group, Centre for Oncology Education and Research Translation (CONCERT), Ingham Institute for Applied Medical Research, South Western Sydney Clinical School, The University of New South Wales, Liverpool, NSW, Australia.
Eur J Cancer Care (Engl). 2022 Nov;31(6):e13269. doi: 10.1111/ecc.13269. Epub 2020 Jun 3.
Cancer patients and caregivers have myriad unmet needs which can have detrimental consequences on their psychosocial wellbeing. This systematic review aims to identify the unmet supportive care needs of immigrant and native Chinese cancer patients and caregivers.
We systematically searched various electronic databases (e.g. Scopus, CINAHL, PsycInfo, etc.) from the earliest date available until January 2018. Additional studies were identified through reference lists and citation tracking. Eligibility criteria included: (a) qualitative, quantitative and/or mixed methods studies published in English; (b) immigrant and native Chinese cancer patients and/or caregivers (age ≥18 years); (c) unmet needs and/or their correlates. Studies were assessed for their risk of bias, and a narrative synthesis of findings was performed.
Forty-seven papers from 45 studies met eligibility criteria. The most prevalent area of unmet needs was health system and information. Patients most commonly desired one member of the hospital to talk to about all aspects of their care. Caregivers preferred information about the patient's prognosis and likely outcome. Anxiety was most commonly associated with higher levels of health system and information needs.
Chinese patients and caregivers experience a range of unmet health system and information needs, which differ depending on their stage along the cancer trajectory.
癌症患者及其照护者有众多未满足的需求,这可能对他们的心理社会福祉产生不利影响。本系统评价旨在确定华裔移民和本土癌症患者及其照护者未满足的支持性照护需求。
我们系统检索了从可获取的最早日期至2018年1月的各种电子数据库(如Scopus、CINAHL、PsycInfo等)。通过参考文献列表和引文追踪确定了其他研究。纳入标准包括:(a)以英文发表的定性、定量和/或混合方法研究;(b)华裔移民和本土癌症患者及/或照护者(年龄≥18岁);(c)未满足的需求及/或其相关因素。评估研究的偏倚风险,并对研究结果进行叙述性综合分析。
45项研究中的47篇论文符合纳入标准。未满足需求最普遍的领域是卫生系统和信息。患者最常希望有一名医院工作人员能就其护理的各个方面进行沟通。照护者更希望了解患者的预后和可能的结果。焦虑最常与更高水平的卫生系统和信息需求相关。
中国患者及其照护者存在一系列未满足的卫生系统和信息需求,这些需求因他们在癌症病程中的阶段不同而有所差异。