Chang Leanne, Fung Timothy K F, Leung Ho Man
Department of Communication Studies, Hong Kong Baptist University, KLN, Hong Kong.
Department of Interactive Media, Hong Kong Baptist University, KLN, Hong Kong.
J Cancer Educ. 2025 Aug;40(4):600-608. doi: 10.1007/s13187-024-02551-5. Epub 2024 Dec 17.
Information is crucial for person-centered cancer care. This study investigated sociodemographic, psychological, and communicative factors associated with perceived information needs and the intention to continue seeking information among individuals with cancer experience in Hong Kong. Data were drawn from the INSIGHTS-Hong Kong (International Studies to Investigate Global Health Information Trends) survey, which included 510 respondents with personal cancer experience or as family members and close friends of those diagnosed with cancer. The findings revealed that 62% of participants perceived knowledge deficits and needed more cancer information, yet only 43% intended to seek additional information. Greater cancer worry, extensive effort in previous information searches, and concerns about information quality were significantly associated with heightened information needs. These results highlight key areas for prioritization in educational and supportive care initiatives to address unmet support needs. Additionally, the intention to seek further information was associated with perceived information needs, cancer severity, subjective norms, and concerns about information usefulness. These findings suggest strategies to enhance supportive care services by addressing unmet information needs through expanding access to credible and clear information, enhancing credibility assessment skills, emphasizing cancer risks, and leveraging support networks for individuals affected by cancer. This study lays the groundwork for future research on cancer information engagement in Hong Kong and other settings.
信息对于以患者为中心的癌症护理至关重要。本研究调查了香港有癌症经历的人群中，与感知到的信息需求以及继续寻求信息的意愿相关的社会人口学、心理和沟通因素。数据来自香港洞察（INSIGHTS-Hong Kong，调查全球健康信息趋势的国际研究）调查，该调查包括510名有个人癌症经历或作为癌症患者家属及密友的受访者。研究结果显示，62%的参与者认为自己存在知识缺口，需要更多癌症信息，但只有43%的人打算寻求更多信息。更大的癌症担忧、之前信息搜索的大量努力以及对信息质量的担忧与更高的信息需求显著相关。这些结果凸显了教育和支持性护理举措中需要优先考虑的关键领域，以满足未得到满足的支持需求。此外，寻求更多信息的意愿与感知到的信息需求、癌症严重程度、主观规范以及对信息有用性的担忧有关。这些发现表明，可通过扩大获取可靠且清晰信息的途径、提高可信度评估技能、强调癌症风险以及利用受癌症影响个体的支持网络来满足未得到满足的信息需求，从而增强支持性护理服务。本研究为香港及其他地区未来关于癌症信息参与的研究奠定了基础。
