慢性疼痛对患者及其配偶的影响：对职业状况、家务分配和照顾负担的影响。

The impact of chronic pain on patients and spouses: Consequences on occupational status, distribution of household chores and care-giving burden.

机构信息

Department of Basic and Clinical Psychology and Psychobiology, Universitat Jaume I, Castelló de la Plana, Spain.

Department of Psychology, McGill University, Montreal, Quebec, Canada.

出版信息

Eur J Pain. 2020 Oct;24(9):1730-1740. doi: 10.1002/ejp.1616. Epub 2020 Jul 20.

DOI:10.1002/ejp.1616

PMID:32533892

Abstract

BACKGROUND

Informal care-giving by spouses has become frequent in chronic pain settings. However, the impact of pain on occupational, functional and health outcomes in spouses has not been systematically investigated.

AIMS

The goal of the present study was to examine the impact of pain on both patient and spousal outcomes.

METHODS

In the present study, the impact of chronic pain on 114 heterosexual dyads was explored (patients: 59% females, average age = 57.81 years, SD = 11.85; spouses: 41% females, average age = 57.32 years, SD = 12.15).

RESULTS

Overall, both patients and spouses reported important consequences of pain on outcomes, including occupational status distribution of household chores and marital satisfaction). Almost 52% of spouses indicated a high-to-severe burden. A multivariate model with spouse and patient factors accounted for 37.8% of the variance of this burden. In the model, patient disability (β = 0.36, p = .002), spouses' change in occupational status (β = 0.26, p = .002) and spousal perception of marital adjustment (β = -0.36, p < .001) were uniquely associated with burden.

CONCLUSIONS

The results indicate that the impact of chronic pain should be evaluated both for patients and spouses and point to patient and spouse factors that might contribute to spousal burden, which might help guide family interventions in a more effective manner.

SIGNIFICANCE

Research has shown that chronic pain poses a significant burden on individuals, which increases their reliance on others for assistance. However, the burden of informal care-giving assumed by spouses of patients with chronic pain has not been systematically investigated. This study offers new insights into the impact of chronic pain on patients and their spouses, which might provide empirical foundation for the development of new avenues for intervention aimed at promoting adjustment in patients with chronic pain and spouses who act as informal caregivers.

摘要

背景

在慢性疼痛环境中，配偶的非正式护理变得频繁。然而，疼痛对配偶的职业、功能和健康结果的影响尚未得到系统研究。

目的

本研究的目的是检查疼痛对患者和配偶结果的影响。

方法

在本研究中，探讨了慢性疼痛对 114 对异性夫妇的影响（患者：女性占 59%，平均年龄为 57.81 岁，标准差为 11.85；配偶：女性占 41%，平均年龄为 57.32 岁，标准差为 12.15）。

结果

总体而言，患者和配偶都报告了疼痛对结果的重要影响，包括家务分配和婚姻满意度。近 52%的配偶表示负担很重。一个包含配偶和患者因素的多元模型解释了这种负担的 37.8%。在该模型中，患者的残疾（β=0.36，p=.002）、配偶职业状况的变化（β=0.26，p=.002）和配偶对婚姻调整的感知（β=-0.36，p<.001）与负担显著相关。