Emergency Department, Copenhagen University Hospital, Nordsjælland, Dyrehavevej 29, 3400, Hillerød, Denmark.
Department of Pulmonary & Infectious Diseases, Copenhagen University Hospital, Nordsjælland, Dyrehavevej 29, 3400, Hillerød, Denmark.
BMC Palliat Care. 2020 Jun 18;19(1):84. doi: 10.1186/s12904-020-00593-2.
It is important to understand the total burden of COPD and thereby be able to identify patients who need more intensive palliative care to avoid deteriorated quality of life. The aim of this study was to describe the psychosocial and demographic characteristics of a population with advanced COPD in a stable phase of the disease.
This study was cross-sectional based on a prospective observational cohort. The following questionnaires were administered: Chronic Respiratory Disease Questionnaire (CRQ), The COPD Assessment Test (CAT), The Hospital and Anxiety and Depression Scale (HADS), The Medical Research Council dyspnoea scale (MRC), and self-rate general health.
We included 242 patients with advanced COPD from a Danish pulmonary outpatient clinic. Their mean FEV was 38% (±12.7) and 19% were treated with long term oxygen. The mean CRQ domain score was CRQ-dyspnea 4.21 (±1.4), CRQ-Mastery 4.88 (±1.3), CRQ-Emotional 4.81 (±1.2), CRQ-Fatigue 3.93 (±1.3). The mean CAT-score was 18.4 (± 6.7), and 44% had a CAT score > 20. The mean score on the subscale for anxiety (HADS-A) and depression (HADS-D) was 5.07 (±3.9) and 5.77 (±3.9), respectively. Thirty percent self-rated their health as bad or very bad and 19.8% were current smokers.
This study describes the characteristics of a population with advanced COPD in a stable phase of their disease. Our results illustrate how the population although treated in an outpatient structure already focusing on palliative needs, still live with unmet palliative needs and impaired quality of life.
了解 COPD 的总体负担非常重要，从而能够识别需要更强化姑息治疗的患者，以避免生活质量恶化。本研究的目的是描述处于疾病稳定期的晚期 COPD 患者的社会心理和人口统计学特征。
这是一项基于前瞻性观察队列的横断面研究。以下问卷被用于评估：慢性呼吸系统疾病问卷（CRQ）、COPD 评估测试（CAT）、医院焦虑和抑郁量表（HADS）、医学研究委员会呼吸困难量表（MRC）和自我评估的一般健康状况。
我们纳入了来自丹麦肺部门诊的 242 名患有晚期 COPD 的患者。他们的平均 FEV 为 38%（±12.7），19%的患者接受长期氧疗。CRQ 各维度评分的平均值为：呼吸困难维度 4.21（±1.4）、掌控感维度 4.88（±1.3）、情绪维度 4.81（±1.2）、疲劳维度 3.93（±1.3）。CAT 评分的平均值为 18.4（±6.7），44%的患者 CAT 评分>20。焦虑亚量表（HADS-A）和抑郁亚量表（HADS-D）的平均得分分别为 5.07（±3.9）和 5.77（±3.9）。30%的患者自我评估健康状况为差或非常差，19.8%的患者仍在吸烟。
本研究描述了处于疾病稳定期的晚期 COPD 患者的特征。我们的研究结果表明，尽管该人群在门诊结构中已经得到了姑息治疗，但仍存在未满足的姑息治疗需求和生活质量受损的情况。
