Gerontology, Simon Fraser University, Vancouver, British Columbia, Canada
Nursing, Vancouver General Hospital, Vancouver, British Columbia, Canada.
BMJ Open. 2020 Jun 17;10(6):e035028. doi: 10.1136/bmjopen-2019-035028.
The number of people with dementia is increasing worldwide, with the majority of people with dementia living at home in the community. WHO calls for global action on the public health response to dementia. Social exclusion is commonly reported by people with dementia and their families. Dementia-friendly and inclusive community has emerged as an idea that holds potential to contribute to the mitigation of social exclusion. The objective of the scoping review is to answer two questions: What social inclusion strategies that have been reported in the dementia-friendly and inclusive communities' literature? What strategies for developing dementia-friendly and inclusive communities that have shown to improve social inclusion?
This scoping review will follow the Joanna Briggs Institute scoping review methodology and will take place between April and September 2020. The proposed review will consider studies based in community settings with participants living at home with early to late stages of dementia and their families. This includes a three-step search strategy: (1) to identify keywords from MEDLINE and CINAHL; (2) to conduct a second search using all identified keywords and index terms across selected databases (MEDLINE, CINAHL, AgeLine, PsycINFO, Web of Science, ProQuest and Google) and (3) to handsearch the reference lists of all included articles and reports for additional studies. Further, we will search Google for grey literature on published organisational reports. Two researchers will screen titles and abstracts independently and then assess the full text of selected citations against inclusion criteria. Extracted data will be presented in a narrative accompanied by tables that reflect the objective of the review.
As the methodology of this study consists of collecting data from publicly available articles, it does not require ethics approval. This scoping review provides an overview of current evidence on strategies that support dementia-friendly and inclusive communities for social inclusion. The findings will offer insights to inform strategies for education, practice, policy and future research. We will share the scoping review results through conference presentations and an open-access publication in a peer-reviewed journal.
全球范围内痴呆症患者人数不断增加,大多数痴呆症患者居住在社区家中。世界卫生组织呼吁全球采取行动应对痴呆症的公共卫生对策。社会排斥是痴呆症患者及其家属经常报告的问题。痴呆症友好和包容社区已成为一种理念,具有缓解社会排斥的潜力。本范围综述的目的是回答两个问题:在痴呆症友好和包容社区文献中报告了哪些社会包容策略?哪些发展痴呆症友好和包容社区的策略已被证明可以改善社会包容?
本范围综述将遵循 Joanna Briggs 研究所的范围综述方法,于 2020 年 4 月至 9 月进行。拟议的综述将考虑基于社区环境的研究,参与者居住在家庭中,患有早期至晚期痴呆症及其家人。这包括三步搜索策略:(1) 从 MEDLINE 和 CINAHL 中确定关键词;(2) 使用所有选定数据库(MEDLINE、CINAHL、AgeLine、PsycINFO、Web of Science、ProQuest 和 Google)中的所有已识别关键词和索引词进行第二次搜索;(3) 手工搜索所有纳入文章和报告的参考文献,以查找其他研究。此外,我们将在 Google 上搜索关于已发表组织报告的灰色文献。两名研究人员将独立筛选标题和摘要,然后根据纳入标准评估选定引文的全文。提取的数据将以叙述形式呈现,并附有反映综述目的的表格。
由于本研究方法包括从公开可用的文章中收集数据,因此不需要伦理批准。本范围综述提供了支持痴呆症友好和包容社区社会包容策略的当前证据概述。研究结果将为教育、实践、政策和未来研究提供策略建议。我们将通过会议演讲和同行评议期刊上的开放获取出版物分享范围综述结果。