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《临终关怀的重大转变:安乐死时代的姑息治疗挑战》。

The Seismic Shift in End-of-Life Care: Palliative Care Challenges in the Era of Medical Assistance in Dying.

机构信息

Centre for Applied Ethics, Pharmacology and Therapeutics, University of British Columbia, Vancouver, British Columbia, Canada.

Bioethics Program, University of California San Francisco, San Francisco, California, USA.

出版信息

J Palliat Med. 2021 Feb;24(2):189-194. doi: 10.1089/jpm.2020.0185. Epub 2020 Jun 23.

Abstract

Concerns regarding personal, professional, administrative, and institutional implications of medical assistance in dying (MAiD) are of particular interest to palliative and hospice care providers (PHCPs), who may encounter additional moral distress and professional challenges in providing end-of-life (EOL) care in the new legislative and cultural era. To explore PHCPs' encountered challenges and resource recommendations for caring for patients considering MAiD. Qualitative thematic analysis of audio-recorded semistructured interviews with PHCPs. Multidisciplinary PHCPs in acute, community, residential, and hospice care in Vancouver, Canada, with experience supporting patients who have made MAiD inquiries or requests. Interviews were deidentified, transcribed verbatim, and coded by four researchers using a common coding scheme. Key themes were analyzed. Twenty-six PHCP participants included physicians ( = 7), nurses ( = 12), social workers ( = 5), and spiritual health practitioners ( = 2). Average interview length was 52 minutes (range 35-90). Analysis revealed four broad challenges associated with providing EOL care after MAiD legalization: (1) moral ambiguity and provider distress, (2) family distress, (3) interprofessional team conflict, and (4) impact on palliative care. Participants also recommended three types of resources to support clinicians in delivering quality EOL care to patients contemplating MAiD: (1) education and training, (2) pre- and debriefing for team members, and (3) tailored bereavement support. PHCPs encountered multilevel MAiD-related challenges, but noted improvement in organizational policies and coordination. Resources to enhance training, pre- and debriefing, and tailored bereavement may further support PHCPs in providing high-quality EOL care as they navigate the legislative and cultural shifts.

摘要

人们尤其关注协助死亡(MAiD)对姑息治疗和临终关怀提供者(PHCPs)的个人、专业、行政和机构影响,因为他们在新的立法和文化时代提供临终关怀时可能会遇到更多的道德困境和专业挑战。本研究旨在探讨 PHCPs 在照顾考虑 MAiD 的患者时遇到的挑战和资源建议。采用音频记录的半结构化访谈对 PHCPs 进行定性主题分析。参与者为加拿大温哥华急性、社区、居住和临终关怀机构的多学科 PHCPs,具有支持提出 MAiD 咨询或请求的患者的经验。访谈经过去识别处理,由四名研究人员使用通用编码方案逐字转录并编码。对关键主题进行分析。26 名 PHCP 参与者包括医生( = 7)、护士( = 12)、社会工作者( = 5)和精神健康从业者( = 2)。平均访谈时间为 52 分钟(范围 35-90 分钟)。分析显示,MAiD 合法化后提供临终关怀的相关挑战主要有四个方面:(1)道德上的模棱两可和提供者的痛苦,(2)家庭痛苦,(3)跨专业团队冲突,(4)对姑息治疗的影响。参与者还建议了三种资源来支持临床医生为考虑 MAiD 的患者提供高质量的临终关怀:(1)教育和培训,(2)团队成员的预讨论和讨论后反馈,(3)量身定制的丧亲支持。PHCPs 遇到了多层次的与 MAiD 相关的挑战,但注意到组织政策和协调有所改善。加强培训、预讨论和讨论后反馈以及量身定制的丧亲支持的资源可能会进一步支持 PHCPs 在他们应对立法和文化转变时提供高质量的临终关怀。

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