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姑息治疗中的伦理问题:护理与生活质量

Ethical issues in palliative care: nursing and quality of life.

作者信息

Ibrahim Ateya Megahed, Zaghamir Donia Elsaid Fathi, Ramadan Abdel-Aziz Hassanat, Elalem Omaima Mohamed, Al-Yafeai Taliaa Mohsen, Sultan Hosny Maher Sultan, Sliman Amina Mohamed Abdelfatah, Elsaid Reham AbdElhamed AbdElmawla, Aboelola Taghreed Hussien, Mersal Fathia Ahmed

机构信息

Family and Community Health Nursing Department, Faculty of Nursing, Port Said University, Port Said, Egypt.

Nursing Department, Nursing College, Prince Sattam Bin Abdulaziz University, Al-Kharj, Saudi Arabia.

出版信息

BMC Nurs. 2024 Nov 25;23(1):854. doi: 10.1186/s12912-024-02530-7.

DOI:10.1186/s12912-024-02530-7
PMID:39581989
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11587657/
Abstract

BACKGROUND

Nurses occupy a pivotal role in the provision of palliative care, acting as frontline providers who address the physical, emotional, social, and spiritual needs of patients. The complexities inherent in palliative care frequently give rise to ethical dilemmas that significantly impact nurses' decision-making and patient interactions. It is therefore essential to gain an understanding of nurses' perceptions of ethical issues, quality of life, and adherence to patient rights in order to enhance the care delivered in these settings.

AIM

This study aims to assess the ethical issues encountered by nurses in palliative care, evaluate their quality of life, and measure their understanding and adherence to patient rights.

METHODS

A quantitative cross-sectional survey was conducted among a sample of 85 nurses working in palliative care settings, specifically within the Oncology Department and Pain Clinic at a Specialized Hospital in Egypt. A stratified random sampling technique was employed. The data were collected using standardised questionnaires, including the Ethical Issues Scale (EIS), the Nursing Quality of Life Scale (NQOLS), and the Patient Rights Questionnaire (PRQ). The validity and reliability of these instruments were established prior to the commencement of the study. The collected data were subjected to mean and standard deviation (SD) calculations. Statistical analyses, including the calculation of Pearson correlation coefficients, were conducted.

RESULTS

The study sample comprised a diverse cohort of nurses, with a mean age of 40 years. The ethical issues were evaluated, yielding a mean score of 4.03 (SD = 0.74) on the EIS, with the highest score for "Patient Care" (M = 4.2, SD = 0.7). The overall quality of life mean score was 6.75, with the working dimension exhibiting the highest mean score at 7.1. The PRQ results indicated a high level of awareness regarding patient rights, with a total mean score of 49.5 (SD = 6.8). The results of the correlation analysis indicated a moderate positive correlation between ethical issues and patient rights (r = 0.52, p < 0.01), and ethical issues and quality of life (r = 0.45, p < 0.01). Conversely, a weaker correlation was found between quality of life and patient rights (r = 0.40, p < 0.05).

CONCLUSIONS

The findings elucidate the ethical challenges confronted by nurses in palliative care and their ramifications for the quality of life and adherence to patient rights. It is imperative that nurses engaged in palliative care undergo continuous education and training in order to enhance their ethical decision-making abilities and thereby improve the quality of care they provide.

RECOMMENDATIONS

It is imperative that strategies be developed to support nurses in addressing ethical dilemmas, to promote awareness of patient rights, and to enhance their overall quality of life through targeted interventions and resources.

CLINICAL TRIAL

No clinical Trial.

摘要

背景

护士在提供姑息治疗中起着关键作用,作为一线提供者,满足患者的身体、情感、社会和精神需求。姑息治疗中固有的复杂性常常引发伦理困境,这对护士的决策和与患者的互动产生重大影响。因此,了解护士对伦理问题、生活质量以及对患者权利的遵守情况,对于提高这些环境中的护理质量至关重要。

目的

本研究旨在评估姑息治疗中护士遇到的伦理问题,评估他们的生活质量,并衡量他们对患者权利的理解和遵守情况。

方法

对埃及一家专科医院肿瘤科和疼痛诊所的85名从事姑息治疗工作的护士进行了定量横断面调查。采用分层随机抽样技术。使用标准化问卷收集数据,包括伦理问题量表(EIS)、护理生活质量量表(NQOLS)和患者权利问卷(PRQ)。在研究开始前确定了这些工具的有效性和可靠性。对收集的数据进行均值和标准差(SD)计算。进行了统计分析,包括计算皮尔逊相关系数。

结果

研究样本包括不同类型的护士,平均年龄为40岁。对伦理问题进行了评估,在EIS上的平均得分为4.03(SD = 0.74),“患者护理”得分最高(M = 4.2,SD = 0.7)。生活质量总体平均得分为6.75,工作维度的平均得分最高,为7.1。PRQ结果表明对患者权利的认识水平较高,总平均得分为49.5(SD = 6.8)。相关分析结果表明,伦理问题与患者权利之间存在中度正相关(r = 0.52,p < 0.01),伦理问题与生活质量之间存在中度正相关(r = 0.45,p < 0.01)。相反,生活质量与患者权利之间的相关性较弱(r = 0.40,p < 0.05)。

结论

研究结果阐明了姑息治疗中护士面临的伦理挑战及其对生活质量和对患者权利遵守情况的影响。从事姑息治疗的护士必须接受持续教育和培训,以提高其伦理决策能力,从而改善他们提供的护理质量。

建议

必须制定策略,支持护士应对伦理困境,提高对患者权利的认识,并通过有针对性的干预措施和资源提高他们的整体生活质量。

临床试验

无临床试验。